May 22, 2018 (Started Aug 13, 2008)

  • Effectiveness
    Major (for Participate in clinical trial)
  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 90 min Daily
Advice & Tips: Probably why I am still breathing without assistance 9/22 18 10 years since inplant. 12.5 Years total
Side effects: difficulty speaking when machine is on

Jan 1, 2012 (Started Aug 13, 2008)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 90 min Daily
Side effects: difficulty speaking when machine is on

Oct 28, 2009 (Started Aug 13, 2008)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 90 min Daily
Side effects: difficulty speaking when machine is on

Apr 4, 2009 (Started Aug 13, 2008)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 90 min Daily
Side effects: difficulty speaking when machine is on

Jan 27, 2009 (Started Aug 13, 2008)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall) (difficulty speaking when machine is on)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 90 min Daily
Advice & Tips: Has improved my FVC
Cost: < $25 monthly
Side effects: difficulty speaking when machine is on
  • 5 helpful marks