Apr 6, 2018 (Started Nov 12, 2015)

  • Effectiveness
    Major (for hypogammaglobulinemia)
  • Side effects
    Mild (for Overall) (fatigue, migraine, abdominal pain, weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 30 g Monthly
Advice & Tips: Continuing to infuse the D5NS with my Gammagard. It makes a huge difference with my side effects. I also don't gain as much weight, however I have to make sure to not take my diuretics for a couple days afterwards or else I get a massive headache.

Jan 16, 2017 (Started Nov 12, 2015)

  • Effectiveness
    Major (for hypogammaglobulinemia)
  • Side effects
    Mild (for Overall) (fatigue, migraine, abdominal pain, weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 30 g Monthly
Advice & Tips: My 12/6/16 infusion had a lot fewer side effects the next day and also the night of. My new immunologist had D5NS infuse at 20 mL/hr in addition to the Gammagard Liquid at my maximum tolerable rate of 40 mL/hr. Having the D5NS really seemed to make a big difference in the decreased side effects. Basically I was just really fatigued for a couple days.

Aug 27, 2016 (Started Nov 12, 2015)

  • Effectiveness
    Major (for hypogammaglobulinemia)
  • Side effects
    Mild (for Overall) (fatigue, migraine, abdominal pain, weight gain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 g Monthly
Advice & Tips: With the Gammagard, I have noticed that my weight jumps about 9 pounds after each infusion. The weight change takes place overnight and after about 7 days, my weight is back to baseline. My insurance requires a new prior authorization every 3 months, which makes it something else that I have to keep tabs on. 

Nov 16, 2015 (Started Nov 12, 2015)

  • Effectiveness
    Can't tell (for hypogammaglobulinemia)
  • Side effects
    Moderate (for Overall) (fatigue, migraine, abdominal pain, weight gain)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 25 g Monthly

  • 2 helpful marks