Oct 22, 2016 (Started May 14, 2011)

  • Effectiveness
    Moderate (for CNS lupus)
  • Effectiveness
    Moderate (for systemic lupus erythematosus)
  • Side effects
    None (for Overall)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 100 mg M,W,F
Cost: $50-99 monthly

Jul 1, 2012 (Started May 14, 2011)

  • Effectiveness
    Can't tell (for CNS lupus)
  • Side effects
    None (for Overall)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 100 mg M,W,F
Advice & Tips: I don't manage it very well. Any body reading this will know that a 3x a week medication is just hard. Easier than a one time a week, but still, hard. I am having a hard time taking my morning meds. I think I am unconvinced that this medicine is safe and effective. I think I should be back on placquenil despite the loss of peripheral vision. I have one of the best neuro- ophthalmologists on the planet monitoring my eyes; why am I driving to Birmingham every three months (having someone drive me) if I don't need his help?
Cost: $100-199 monthly

  • 0 helpful marks