• Effectiveness

  Slight (for amyotrophic lateral sclerosis)
• Side effects

  None (for Overall)
• Adherence

  Usually
• Burden

  Somewhat hard to take

Dosage: 200 mg Weekly

Advice & Tips: Performed self injection of sodium chlorite after end of NP001 trial but no longer seemed to be working.

Cost: < $25 monthly

• Effectiveness

  Slight (for amyotrophic lateral sclerosis)
• Side effects

  None (for Overall)
• Adherence

  Usually
• Burden

  A little hard to take

Dosage: 200 mg Weekly

Advice & Tips: On Monday June 18 I self administered my weekly infusion of 4 ml = 200 mg of sodium chlorite. About one hour later I went for my daily 1/2 hour swim. For the first time since starting this swimming program about 3 weeks ago I didn't feel like I was on the verge of drowning, i.e., just barely able to keep my head above water. Also, my breathing felt more 'productive'. Previously I would swim one lap and rest at the end breathing very hard, but it felt as if I couldn't get enough air into my lungs and I would breath hard for along time. This time it felt normal where I would breath hard for only a short time.

Cost: < $25 monthly

• Effectiveness

  None (for amyotrophic lateral sclerosis)
• Side effects

  None (for Overall)
• Adherence

  Always
• Burden

  A little hard to take

Dosage: 200 mg Daily

Advice & Tips: May 30 infusion. No improvements.

Cost: < $25 monthly

• Effectiveness

  Can't tell (for amyotrophic lateral sclerosis)
• Side effects

  None (for Overall)
• Adherence

  Usually
• Burden

  Somewhat hard to take

Dosage: Daily

Advice & Tips: Performed an infusion Friday April 20. Unlike the previous infusion I did not experience an improvement in swallowing.

Cost: < $25 monthly

• Effectiveness

  Major (for amyotrophic lateral sclerosis)
• Side effects

  None (for Overall)
• Adherence

  Usually
• Burden

  Somewhat hard to take

Dosage: Daily

Advice & Tips: I have now given myself two rounds of IV infusions of off the shelf sodium chlorite. I was ready to give up on sodium chlorite because its effect has been diminishing since the tail end of the NP001 study. However, was pleasantly surprised this time. Lately I have been drinking seltzer water rather than tap water because I find it much easier to swallow. In fact, I have not been able to swallow plain water for over a month now. Last night I grabbed my glass of water and was drinking it while watching my son on the swing. While I usually focus like a laser on the task of drinking I wasn't paying attention, rather I was focused on my son. After a few sips of water I realized that the water had gone flat and I was still able to drink it. Also I could drink it without doing the chin tuck, which has also been necessary for the last couple of months. The difference is small but unquestionably real. I am approaching my one year 'chlorite' anniversary. I had my first infusion in June of 2011. This is very encouraging and tells me that chlorite is still having some effect.

Cost: < $25 monthly