18 patient evaluations for Vagus Nerve Stimulation (VNS)
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Jun 12, 2019 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsMild (for Overall) (coughing while drinking, dry cough, hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
Actually catches most seizures. The bulk Happens when going to bed. I was flabberghasted because battery is at 75%-100%. I have had it since Aug. 29, 2017. The nuerosurgeon said it should last 3-4 years. Looks like I will hit 4-6 year, or hoping. Has picked up my attitude.
Cost:
< $25 monthly
Apr 23, 2019 (Started Dec 10, 1999)
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EffectivenessModerate (for epilepsy)
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Side effectsMild (for Overall) (coughing while drinking, dry cough, hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
Various sensations. Pain when tashecadia turns it on in the hollow area under my addams apple. At various time theres a rapid pulsating sensation 1 or 1.5 inches above the middle of right clavicle. Sometimes along with the aura theres a super rapid tritchig on the inner side of the bicep on right arm
Cost:
< $25 monthly
Dec 1, 2018 (Started Dec 10, 1999)
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EffectivenessModerate (for epilepsy)
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Side effectsMild (for Overall) (coughing while drinking, dry cough, hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 8, 2018 (Started Dec 10, 1999)
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EffectivenessModerate (for epilepsy)
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Side effectsMild (for Overall) (coughing while drinking, dry cough, hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
still hoarse some and only have problem swallowing a drink when the Tachecardia sensor turns it on.
Cost:
< $25 monthly
May 9, 2018 (Started Dec 10, 1999)
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EffectivenessModerate (for epilepsy)
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Side effectsMild (for Overall) (coughing while drinking, dry cough, hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Nov 16, 2017 (Started Dec 10, 1999)
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EffectivenessModerate (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
left lead has 2 wires and the new VNS's have 1. So had to get a new lead on mt right sideon 8/29/17.
Cost:
< $25 monthly
Dec 11, 2016 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsMild (for Overall) (dry cough, hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 14, 2016 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsMild (for Overall) (dry cough, hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
Ever since increasing the frequency last time my seizures dropped at a very noticlable rate unless I was very stressed. The end of September I noticed the hiccups happen only after using the magnet. So I want magnet lowered to match when the VNS goes off normally. I want what ever they did increased by half.
Cost:
< $25 monthly
May 24, 2016 (Started Dec 10, 1999)
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EffectivenessModerate (for epilepsy)
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Side effectsMild (for Overall) (dry cough, hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Apr 26, 2016 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
Was implanted 8/12/09 and on my last study visit approx January 2014 it was at 50%. my first clinic on 2/13/14 its still 50%. On 1/18/16 it was raised along with my Aptiom. Seizures Decreased but not sure why, still at 50%. At this appointment 4/25/16 it was increased again along with making the maknet setting higher. Was STILL at 50%.
I asked his nurse and was told so BS excuse that is where it should be. you Mean to tell me that in 5 years 4 months I used 50%. But 2 years 5 months later It is common to have not used even 1%. I think it should have at least used 5-10%.
Cost:
< $25 monthly
Nov 12, 2015 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
no packing list.
Cost:
< $25 monthly
Feb 19, 2015 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Jan 21, 2015 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
the last replacement of the generator was 8-12-2009. not sure how much more juice this uses now since increased. After my last visit in December 18th 2014 the seizure have gone down the following week but are back up now. I have had 136 in the past 4 weeks according to this.
Cost:
< $25 monthly
Dec 20, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Nov 28, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Nov 18, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsMild (for Overall) (hoarseness)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
the cough lasted only 2 hours after the increase.
Cost:
< $25 monthly
Nov 3, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 24, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
wanna raise strength maybe frequency.
Cost:
< $25 monthly
Oct 21, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 17, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 14, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 12, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
eanna raise it or the frequency.
Cost:
< $25 monthly
Oct 11, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Oct 9, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
curious about raising it. Since being replaced it has only been changed a couple times. I just dont want it to be as strong as the magnet. msybe legthen time on. Ask Dr. Labiner
Cost:
< $25 monthly
Oct 7, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
like to try to raise VNS a little. Dont think we do much but check it in the drug study may have raised the manual activation strength. Can't remember any other times.
Cost:
< $25 monthly
Oct 5, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 26, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 25, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 18, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 15, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 12, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Advice & Tips:
at about 50% so have 4-5 more years on this one.
Cost:
< $25 monthly
Sep 10, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 8, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Sep 4, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
Aug 31, 2014 (Started Dec 10, 1999)
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EffectivenessMajor (for epilepsy)
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
As needed
Cost:
< $25 monthly
- 0 helpful marks
Jan 12, 2014 (Started Jul 21, 2010)
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EffectivenessMajor (for seizures (grand mal or tonic-clonic))
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Side effectsNone (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
Daily
Advice & Tips:
I STRONGLY suggest to all of you who are a candidate for a VNS to go for it. You have nothing to lose. This has changed my life and my family's also. I even finally got my drivers license at the age of 42. Miracles can happen.
Cost:
< $25 monthly
Side effects:
strange cough
Jun 17, 2012 (Started Jul 21, 2010)
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EffectivenessMajor (for seizures (grand mal or tonic-clonic))
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Side effectsMild (for Overall) (strange cough)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
Daily
Advice & Tips:
I can only say this the VNS has changed my life totqlly and I have a new outlook for life. I feel better and I want to wake up in the morning and look forward to the day. I must say if you have the opportunity to have this procedure done take it.
Cost:
< $25 monthly
Side effects:
strange cough
Oct 6, 2010 (Started Jul 21, 2010)
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EffectivenessSlight (for seizures (grand mal or tonic-clonic))
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Side effectsMild (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
Daily
Advice & Tips:
Patience, this treatment takes a lot of patience. There are many side effects and it takes a lot of time but in my eyes in the long run it will all be worth it. I just went through a day where I had 4 grand mal seizures in one day and ended up in the ICU for three days. My wife told my that the seizures were shorter and I came out of them faster so I look at it this way The VNS is starting to work. I just have to be patient and that is the best advice I can give to anyone thinking of this procedure. Be PATIENT it will work out in time.
Cost:
< $25 monthly
Side effects:
strange cough
Aug 25, 2010 (Started Jul 21, 2010)
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EffectivenessMajor (for seizures (grand mal or tonic-clonic))
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Side effectsModerate (for Overall)
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AdherenceAlways
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BurdenNot at all hard to take
Dosage:
Daily
Advice & Tips:
I only had the surgery a month ago but I have already seen improvements. I have had seizures without losing consciousness or having convulsions. I am very horse but i am sure when they find the right level my voice will get back to normal. I mean after all the stimulator is going off every 5 minutes right now. i can't tell when it goes off anymore. I could for the first couple of days.
Side effects:
strange cough
- 2 helpful marks
Aug 10, 2012 (Started Jan 11, 2012)
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EffectivenessMajor (for seizures (complex partial))
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EffectivenessMajor (for epilepsy)
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Side effectsModerate (for Overall) (shortness of breath (dyspnea))
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AdherenceAlways
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BurdenA little hard to take
Dosage:
Daily
Advice & Tips:
It takes some getting use to. See a neurophyscologist to help you to accept and adjust. It is a physical and mental challange but once you have gotten over the first hurdle and can see the change it is making it does become easier. Unexpected benifit for me is that I feel more alert and less tired. It has been a positive treatment for me.
Cost:
< $25 monthly
- 1 helpful mark
Last updated:
Showing 3 of 18 patient evaluations for Vagus Nerve Stimulation (VNS)