20 patient evaluations for Mitoxantrone

May 15, 2003 (Started Jun 01, 2002)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    Severe (heart palpitations)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: Novantrone only caused me heart and vein damage, every vein they used for an infusion sclerosed and died. Made my MS worse, still walking when started 2002, after 7 doses over 1 year, had to get cane, and heart LVEF went from 60 to 50 so I stopped the drug. Coninued to worsen for 10 mo, then started LDN, immediate improvements, stopped using cane w.i 6 weeks.

  • 0 helpful marks

Mar 5, 2002 (Started Mar 05, 2001)

  • Effectiveness
    Major (for multiple sclerosis)
  • Effectiveness
    Major (for secondary progresssive M.S.)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: While I was taking Novantrone, I had very very little side effects, maybe slight nausea once, but the benefits for outweigh any problems!! It was definately worth it!!

Sep 15, 2001 (Started Mar 05, 2001)

  • Effectiveness
    Major (for multiple sclerosis)
  • Effectiveness
    Major (for secondary progresssive M.S.)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2 mg Daily
Advice & Tips: I took IV Novantrone every 3 months for two years. Since that time, I have not had another exacerbation of the MS. I think if is wonderful and very thankful that I was able to take it! Now I do have a pretty normal life!! Although I had already lost my job due to cognitive difficulties caused by the MS, I wish I could have taken it at the very beginning!!

  • 0 helpful marks
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