10 patient evaluations for Cyclophosphamide

Oct 22, 2016 (Started Jun 30, 2008)

  • Effectiveness
    Slight (for CNS lupus)
  • Side effects
    Mild (bone marrow suppression)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Advice & Tips: This is a muscle relaxer and theoretically should have no effect on nerve pain, but when I went off of it for a short time because my insurance wanted me to try a different drug, I immediately started having worse nerve pain in my feet.  Now I've been back on it for about a week and I think the pain is better.  Of course, it could be placebo effect, but that doesn't matter to me, does it?
Cost: < $25 monthly

Oct 14, 2016 (Started Jun 30, 2008)

  • Effectiveness
    Major (for CNS lupus)
  • Side effects
    Severe (bone marrow suppression)
  • Adherence
    Never taken as prescribed
  • Burden
    Very hard to take
Advice & Tips: This is Cytoxen, a chemotherapy drug.  I had monthly treatments for nine months, became so anemic that I got dehydrated from low blood volume and went into renal failure twice.  It did stop my seizures, episodes of amnesia and other neuropsychiatric symptoms for a long time.  It was worth the risks.
Cost: $200+ monthly

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Showing 1 of 10 patient evaluations for Cyclophosphamide