Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Troy_D
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Troy Davis Male, 56 years WA, United States First Symptom: 03/16
Dx: 04/16
cjewing2
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Bill Ewing Male, 62 years Hague, VA First Symptom: 08/15
Dx: 08/16
Fz950
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
F Z Female, 50 years CA, United States First Symptom: 07/15
Dx: 08/16
jackconrad
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
JACK CONRAD Male, 61 years MIDDLETOWN, PA First Symptom: 06/16
Dx: 05/16
Davide48
Sex: M
Data Quality: 3 stars
ALS: 8 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
David Chamberlain Male, 69 years Statesville, NC First Symptom: 07/09
Dx: 11/14
Newyorkrob
Sex: M
Data Quality: 1 star
ALS: 11 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Robin Mcumber Male, 62 years NY, United States First Symptom: 06/06
Dx: 07/08
Jodialeszka
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Blair Aleszka Male, 47 years Twin lake, MI First Symptom: 06/15
Dx: 11/15
RichL99
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Rich Lieberman Male, 54 years Stamford , CT First Symptom: 05/14
Dx: 03/16
zarahnar
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: mild
Carol Ziegler Female, 61 years Stanton, ND First Symptom: 07/14
Dx: 11/15
saintmic69
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Gary St.Laurent Male, 57 years AL, United States First Symptom: 01/12
Dx: 09/15
tsitton
Sex: F
Data Quality: 1 star
ALS: 1 yr
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
Tami Sitton Female, 59 years Montrose , CO First Symptom: 10/15
Dx: 04/16
adolfas
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Male, 79 years ocean ilse beach, NC First Symptom: 01/07
Dx: 10/12
LollyandPop
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: mild
Walter Raymond Male, 59 years NJ, United States First Symptom: 02/13
Dx: 11/14
Gill_G
Sex: M
Data Quality: 2 stars
ALS: 3 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
Guillermo Garcia Male, 42 years Floresville, TX First Symptom: 09/14
Dx: 11/15
mjrcar
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Michael Robinson Male, 46 years United States First Symptom: 01/15
Dx: 12/15
mythreecents
Sex: F
Data Quality: 3 stars
ALS: 2 yrs
Wheelchair
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Female, 52 years victoria, BC First Symptom: 06/15
Dx: 06/16
Klaus73
Sex: M
Data Quality: 2 stars
ALS: 2 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Klaus Kerl Male, 75 years SUQUAMISH, WA First Symptom: 09/15
Dx: 04/16
vateresa
Sex: F
Data Quality: 3 stars
ALS: 1 yr
Feeding tube
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Teresa Libera Female, 55 years Reston, VA First Symptom: 10/15
Dx: 05/16
mslat
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Matt Slatner Male, 39 years Richmond, VA First Symptom: 10/13
Dx: 03/15
Bob1316
Sex: M
Data Quality: 2 stars
ALS: 3 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Robert Johnson Male, 61 years WI, United States First Symptom: 01/13
Dx: 05/13