Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
locura
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
Elisa Simon -Zurita Female, 60 years Madrid, Madrid First Symptom: 03/04
Dx: 02/05
Fz950
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
F Z Female, 50 years CA, United States First Symptom: 07/15
Dx: 08/16
BENTAOUZA
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
BENTAOUZA ZOULIKHA member since
TammyGirl09
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Kristina Zafiro-Spalitta Female, 41 years CA, United States First Symptom: 09/06
Dx: 08/08
Josif
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Josif Zafirovic Male, 65 years Nis, Serbia First Symptom: 01/07
Dx: 04/08
zarahnar
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: mild
Carol Ziegler Female, 61 years Stanton, ND First Symptom: 07/14
Dx: 11/15
lin
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
Linda Zijtveld van Female, 49 years Harderwijk, Netherlands First Symptom: 06/02
Dx: 08/05
nzolotar
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: mild
Svetlana Zolotareva Female, 77 years Tamarac, FL First Symptom: 09/07
Dx: 06/09
egriffi
Sex: F
Data Quality: 0 stars
ALS: 17 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Beth Zorn Female, 66 years Peoria, AZ First Symptom: 03/00
Dx: 08/01
BoIl
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Bojan Zupanec Male, 50 years Berlin, Germany First Symptom: 09/05
Dx: 09/06
meezer
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
sharon zesut member since
zcjdm
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
changjian zhou member since