Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
yrnssrinivas
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: severe
SRINIVAS YRNS Male, 51 years Visakhapatnam, Andhra Pradesh First Symptom: 08/05
Dx: 10/05
HIRORINKO
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Hiroshi Yajima member since
bikerdude
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Don Yasuda First Symptom: 07/07
Dx: 04/10
Duece
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Jason Yoder Male, 38 years Buffalo, NY First Symptom: 11/97
Dx: 06/07
toodie47
Data Quality: 1 star
  • Gender: Female
  • Age: 69y
Condition: hereditary spastic paraplegia 1 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: Neutral
Laurel Yost Female, 69 years Scarville, IA First Symptom: 01/99
Dx: 09/99
dyoudan
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: mild
Dawn Youdan First Symptom: 06/00
Dx: 10/01
Yogarow
Sex: F
Data Quality: 2 stars
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
Cathy Young Female, 73 years Bellingham, WA First Symptom: 06/12
Dx: 10/13
syhawk
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Sean Younger Male, 40 years Chanute, KS First Symptom: 10/05
Dx: 03/06
cheekymonkey
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
Melissa Youngren-Newton Female, 40 years Montgomery, MN First Symptom: 06/04
Dx: 05/07
Johnyuhas
Sex: M
Data Quality: 0 stars
ALS: 19 yrs
Ventilator Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
John Yuhas Male, 65 years Syracuse, NY First Symptom: 02/98
Dx: 02/99
prabath
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
prabath yapa member since
landlyne
Sex: M
Data Quality: 0 stars
PMA: 20 yrs
Bi-Pap Feeding tube
Bulbar: mild
Arms: mild
Chest: moderate
Legs: none
liu yiping Male, 34 years beijing, beijing First Symptom: 02/97
Dx: 03/07
abbie614
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
susan yoakum member since
amiyoder
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
ami yoder First Symptom: 01/06
Dx: 09/07
wood3766
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
John young member since
ayung
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
alex yung Male, 73 years Santigo, Chile First Symptom: 03/04
Dx: 12/04