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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter W.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Ywilson
Sex: F
Data Quality: 2 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Yvonne Wilson Female, 59 years Glasgow, United Kingdom First Symptom: 11/08
Dx: 06/09
yar1982mmer
Sex: M
Data Quality: 2 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Raymond Wimmer Male, 66 years Pleasant Grove, UT First Symptom: 07/07
Dx: 02/10
jaws-als
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Aaron Winborn Male, 48 years Harrisburg, PA First Symptom: 08/10
Dx: 03/11
dawinger
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Dennis Wingness Male, 63 years Coon Rapids, MN First Symptom: 10/05
Dx: 05/07
LivingWithALS
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
John Winkelman Male, 56 years Los Altos, CA First Symptom: 09/08
Dx: 08/09
john33
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
John Winstanley Male, 59 years Melbourne, Australia First Symptom: 03/04
Dx: 08/05
Poker Lady
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Cathy Winston member since
JoeW
Sex: M
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Joe Wions Male, 65 years Hillsborough, NJ First Symptom: 04/00
Dx: 05/03
srwitt
Sex: F
Data Quality: 0 stars
PLS: 11 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Sarah Witt Female, 48 years Raleigh, NC First Symptom: 03/04
Dx: 12/05
jeromejw
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Jerome jw Wlodarcyzk Male, 76 years manolia , NJ member since
Catherine Wolf
Sex: F
Data Quality: 1 star
ALS: 19 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Catherine Wolf Female, 68 years Katonah , NY First Symptom: 05/96
Dx: 10/98
bnormal
Sex: M
Data Quality: 0 stars
ALS: 14 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: severe
Robert Wolf Male Ambler, PA First Symptom: 06/01
Dx: 07/04
honeydo
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Raymond J Wolski Male, 69 years Parrish, FL First Symptom: 01/08
Dx: 04/08
trymybest
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
hank wong member since
LoveBeingNana
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Jana Wood Female, 60 years Comstock Park, MI First Symptom: 04/05
Dx: 01/08
brtwood
Sex: M
Data Quality: 0 stars
ALS: 32 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Bert Woodard Male, 57 years Satsuma , AL First Symptom: 09/82
Dx: 06/83
tonjeep
Sex: M
Data Quality: 1 star
ALS: 13 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Tom Woodburn Male, 66 years Madison, IN First Symptom: 08/02
Dx: 08/05
genehopeful
Sex: M
Data Quality: 0 stars
ALS: 14 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: severe
gene wootan Male, 69 years Baker, LA First Symptom: 03/01
Dx: 01/02
avagency
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Bill Wooten Male, 58 years Nashville, TN First Symptom: 02/04
Dx: 08/05
umworden
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: severe
ursula worden Female, 59 years salt lake, UT First Symptom: 10/06
Dx: 03/07