Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
wallyw1
Sex: M
Data Quality: 0 stars
ALS: 17 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Wallace Wojtowicz, Jr. Male, 48 years Clifton Park, NY First Symptom: 01/98
Dx: 09/02
Catherine Wolf
Sex: F
Data Quality: 1 star
ALS: 21 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Catherine Wolf Female, 70 years Katonah , NY First Symptom: 05/96
Dx: 10/98
bnormal
Sex: M
Data Quality: 0 stars
ALS: 16 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: severe
Robert Wolf Male Ambler, PA First Symptom: 06/01
Dx: 07/04
Lisa WB
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: none
Lisa Wollman Bolick Female, 61 years Emmaus, PA First Symptom: 06/04
Dx: 04/06
honeydo
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Raymond J Wolski Male, 69 years Parrish, FL First Symptom: 01/08
Dx: 04/08
KipWong
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: severe
Legs: moderate
Kip Wong Male, 60 years Renton, WA First Symptom: 08/12
Dx: 11/13
LoveBeingNana
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Jana Wood Female, 62 years Comstock Park, MI First Symptom: 04/05
Dx: 01/08
brtwood
Sex: M
Data Quality: 0 stars
ALS: 34 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Bert Woodard Male, 59 years Satsuma , AL First Symptom: 09/82
Dx: 06/83
tonjeep
Sex: M
Data Quality: 1 star
ALS: 14 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Tom Woodburn Male, 67 years Madison, IN First Symptom: 08/02
Dx: 08/05
avagency
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Bill Wooten Male, 60 years Nashville, TN First Symptom: 02/04
Dx: 08/05
mrzuben
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: none
Chest: mild
Legs: mild
Wright First Symptom: 03/06
Dx: 04/07
runaway
Sex: M
Data Quality: 0 stars
ALS: 17 yrs
Bi-Pap Feeding tube
Bulbar: mild
Arms: mild
Chest: moderate
Legs: moderate
Daniel Wright Male, 70 years Roanoke, VA First Symptom: 03/00
Dx: 08/06
Dennis
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Dennis Wright Male, 58 years Bloomington, IN First Symptom: 06/01
john1789
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
John Wright Male, 65 years Diablo, CA First Symptom: 09/04
Dx: 03/06
Juicy
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Ken Wright First Symptom: 10/07
Dx: 01/08
Georg Wunderlich
Sex: M
Data Quality: 0 stars
ALS: 24 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Georg Wunderlich Male, 69 years Germany First Symptom: 03/93
Dx: 01/04
dkwyn
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Donna Wynder member since
evansmom
Sex: F
Data Quality: 2 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
l w Female, 52 years NC, United States First Symptom: 07/03
Dx: 11/04
ShercoH
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
howard wallace Male, 49 years canberra, ACT First Symptom: 05/06
Dx: 08/07
tonyw
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
tony wallace Male, 67 years Arlington, VA First Symptom: 01/04
Dx: 09/04