Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
LOL666
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
LORRAINE URQUHART Female, 52 years LONDON, United Kingdom First Symptom: 05/06
Dx: 12/08
eduardofuc
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Eduardo Unda Male, 41 years Aberdeen, Aberdeenshire First Symptom: 02/10
Dx: 12/10
Zippo
Sex: F
Data Quality: 2 stars
ALS: 13 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Laura Urbiha Female, 56 years Farmington Hills, MI First Symptom: 08/04
Dx: 03/06
jrtu
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Deb Ure Female, 56 years Gravenhurst, ON First Symptom: 09/04
Dx: 07/08
Blodwyn
Sex: F
Data Quality: 0 stars
ALS: 4 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: mild
Chest: mild
Legs: mild
Beth Uyehara Female Los Angeles, California First Symptom: 03/06
Dx: 05/08
doug uraneck
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
douglas uraneck Male, 76 years South Portland, ME First Symptom: 10/04
Dx: 05/06