Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Wy HavocSolomon T.
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Wyvondia HavocSolomon Thompson Female, 43 years GrandRapids, MI First Symptom: 02/04
Dx: 09/04
Narges Karimi
Sex: F
Data Quality: 3 stars
ALS: 4 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Narges Karimi Tehrani Female, 65 years Tehran, Tehran First Symptom: 01/08
Dx: 09/09
Pham Thanh Giang
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Giang Pham Thanh Male, 48 years Phan Thiet, Binh Thuan First Symptom: 01/04
Dx: 04/04
Patsy
Sex: F
Data Quality: 1 star
ALS: 20 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Patricia (Patsy) Seguin-Tremblay Female, 54 years Kapuskasing , ON First Symptom: 04/97
Dx: 09/98
Sheila T
Sex: F
Data Quality: 0 stars
ALS: 14 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Sheila T Female Somewhere in, United States First Symptom: 09/03
Dx: 08/04
5CATS
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
COLLEEN TAIT Female, 55 years GIG HARBOR, WA First Symptom: 02/09
Dx: 12/09
PITBULL
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
STEVE TIEMAN Male, 69 years BUTLER, IN First Symptom: 12/05
Dx: 11/07
DAWN
Sex: F
Data Quality: 0 stars
ALS: 2018 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
DAWN TILLEY Female, 52 years BARNET, United Kingdom First Symptom: 01/01
Dx: 01/01
Sheila
Sex: F
Data Quality: 0 stars
ALS: 17 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Sheila Tague Female, 69 years Phoenix, AZ First Symptom: 03/00
Dx: 03/05
Kiwi Kay
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: moderate
Kay Taiala Female, 69 years Ashburton, New Zealand First Symptom: 08/05
Dx: 06/06
Vladimir
Sex: M
Data Quality: 0 stars
ALS: 18 yrs
Bi-Pap
Bulbar: mild
Arms: none
Chest: mild
Legs: none
Vladimir Tal Male, 58 years Kiev, Ukraine First Symptom: 01/99
JoJo
Sex: F
Data Quality: 1 star
ALS: 17 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Jo-Anne Taniwa Female, 74 years Terrace Bay, ON First Symptom: 06/00
Dx: 07/04
Arty
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Arty Tapp Male, 48 years Batesville, MS First Symptom: 07/95
Dx: 05/97
nikonuser1
Sex: F
Data Quality: 2 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Linda Tarbox Female, 65 years Sandown, NH First Symptom: 07/05
Dx: 11/10
Lake Lady
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: mild
Legs: mild
Susan Tarlton Female, 71 years NC, United States First Symptom: 03/03
Dx: 10/04
JIMJIM
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: none
Jimmy Tate First Symptom: 01/06
Dx: 08/07
geezergeek
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Tony Taubert Male, 78 years Clinton, IL First Symptom: 01/06
Dx: 01/07
EricT
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
Eric Tauchert Male, 71 years Barnegat, NJ First Symptom: 01/95
Dx: 01/96
donhing
Sex: M
Data Quality: 2 stars
ALS: 13 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Don Taylor Male, 60 years Fort Collins , CO First Symptom: 06/04
Dx: 01/05
Serenitygal
Sex: F
Data Quality: 2 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Gloria Taylor Female, 64 years Westbank, BC First Symptom: 09/03
Dx: 12/09