Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Devildog
Sex: M
Data Quality: 0 stars
PLS: 10 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Dan Spilker Male, 66 years Quincy, IL First Symptom: 09/06
Dx: 01/08
Melissa
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
Melissa Spivack Female, 54 years San Francisco, CA First Symptom: 10/05
Dx: 02/06
Auburn1020
Sex: M
Data Quality: 1 star
ALS: 13 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
Randy Spraggins Male, 64 years Coon Rapids, MN First Symptom: 06/04
Dx: 07/07
saintmic69
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Gary St.Laurent Male, 57 years AL, United States First Symptom: 01/12
Dx: 09/15
sstafne
Sex: M
Data Quality: 2 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Scott Stafne Male, 40 years Minneapolis, MN First Symptom: 11/03
Dx: 09/04
momals
Sex: F
Data Quality: 0 stars
ALS: 17 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
christina Stammler Female, 50 years PA, United States First Symptom: 01/00
Dx: 03/01
SandraJeanette
Sex: F
Data Quality: 2 stars
ALS: 1 yr
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Sandra Stanbery Female, 58 years Granby, MO First Symptom: 06/16
Dx: 12/16
bsquaid
Sex: M
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Brian Stanfield Male, 43 years Tulsa, OK First Symptom: 11/01
Dx: 06/03
SylChe
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Feeding tube
Bulbar: mild
Arms: none
Chest: mild
Legs: moderate
Veronica Stanley Female, 69 years Lawrenceville, GA First Symptom: 03/06
Dx: 08/06
Rick Stapp
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
Ricky Stapp Male, 42 years Indianapolis, IN First Symptom: 01/07
Dx: 12/07
msjojo
Sex: F
Data Quality: 0 stars
ALS: 19 yrs
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Joanne Stark Female, 59 years Parksville, Canada First Symptom: 09/97
Dx: 09/00
Pappy 72
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Russell Staup Jr Male, 73 years Roscoe, PA First Symptom: 11/96
Dx: 07/99
Di Stead
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
Diane Stead Female, 64 years Hudson, FL First Symptom: 11/02
Dx: 04/07
Norma Steck-Hess
Sex: F
Data Quality: 0 stars
ALS: 18 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Norma Steck-Hess Female, 73 years Flushing, NY First Symptom: 11/98
Dx: 11/99
reugie
Sex: F
Data Quality: 0 stars
ALS: 18 yrs
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Fran Steele Female, 78 years Warner Springs, CA First Symptom: 01/99
Dx: 06/08
Jeff
Sex: M
Data Quality: 0 stars
ALS: 16 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: moderate
Jeffrey Steer Male, 63 years Hailsham, East Sussex, United Kingdom First Symptom: 06/01
Dx: 09/03
ras
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Robert Stehlin First Symptom: 11/08
Dx: 09/09
patriceblue
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Patrice Steinhour Female, 65 years Mesick, MI First Symptom: 08/08
Dx: 06/09
DaveS
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Dave Stelma Male, 44 years Grand Rapids, MI First Symptom: 06/06
Dx: 04/07
Askim
Sex: F
Data Quality: 0 stars
ALS: 31 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
Lena Stenström Female, 64 years Gotenburgh, Sweden First Symptom: 04/86
Dx: 10/87