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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter S.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
NotFinished
Sex: M
Data Quality: 2 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Timothy Slama Male, 49 years Olmsted Falls, OH First Symptom: 07/06
Dx: 01/09
caddyman
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
brad sligar Male, 55 years hutchison , KS First Symptom: 01/06
Dx: 02/07
hillbilly
Sex: F
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Melonie Smelser Female, 49 years AR, United States First Symptom: 01/06
Dx: 08/06
farmoil
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Steven Smiley Male, 58 years Borrego Springs, CA First Symptom: 09/06
Dx: 05/08
Funnywriter
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Bob Smith First Symptom: 07/05
Dx: 04/07
Cary Smith
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Cary Smith Male, 45 years Atlanta, GA First Symptom: 01/02
Dx: 09/02
Dsmith
Sex: M
Data Quality: 1 star
ALS: 12 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: moderate
Darren Smith Male, 55 years Fayetteville, GA First Symptom: 04/03
Dx: 06/04
dorosmith
Sex: F
Data Quality: 1 star
ALS: 5 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
Dorothy Smith Female, 66 years Edison, NJ First Symptom: 01/10
Dx: 06/10
Sam Tosha
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: none
Edward Smith Male, 57 years Toronto, Ontario First Symptom: 07/06
Dx: 07/07
Ernie
Sex: M
Data Quality: 0 stars
ALS: 19 yrs
Bi-Pap
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
Ernie Smith Male, 76 years Salinas, CA First Symptom: 10/95
Dx: 02/98
Retired2CISC
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: mild
Legs: severe
Fred M. Smith Male, 75 years Beaufort, SC First Symptom: 02/05
Dx: 07/06
gvrs
Sex: M
Data Quality: 0 stars
ALS: 14 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
George Smith Male, 77 years Savannah, GA First Symptom: 12/00
Dx: 08/03
jayuff
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
jeff smith Male, 58 years sandersville, GA First Symptom: 08/06
Dx: 07/07
griefel
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: none
Mike Smith member since
rws
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
robert smith Male, 67 years Puerto Rico First Symptom: 07/07
Dx: 05/09
sandrams
Data Quality: 0 stars
ALS: 8 yrs
Feeding tube
Bulbar: severe
Arms: none
Chest: none
Legs: moderate
Sandra Smith First Symptom: 03/07
Dx: 05/07
Steve Smith
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Ventilator Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: moderate
Steve Smith Male, 61 years Winterville, NC First Symptom: 12/99
Dx: 06/01
Gardenlady
Data Quality: 0 stars
ALS: ? yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: none
Virginia Smith member since
smith48327
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
WESLEY SMITH Male, 61 years WATERFORD , MI First Symptom: 01/02
Dx: 09/02
jessluke
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: moderate
Legs: mild
ralph SNIDOW First Symptom: 09/05
Dx: 11/08