Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
glupavomomiche
Sex: F
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Sarah R Female, 38 years Lufkin, TX First Symptom: 02/10
Dx: 09/11
minou
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
MARIE-CLAIRE RAK Female, 66 years squamish, Canada First Symptom: 09/04
Dx: 06/05
hopeneverdie
Sex: F
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap Wheelchair
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
ANA RAMOS Female, 46 years bronx, NY First Symptom: 12/09
Dx: 07/10
RMMERAMOS
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap
Bulbar: severe
Arms: mild
Chest: moderate
Legs: mild
RALPH RAMOS Male, 58 years Albuquerque, NM First Symptom: 11/04
Dx: 04/06
DAVIDA
Sex: F
Data Quality: 0 stars
ALS: 23 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: none
davida RANDALL Female, 68 years taos, NM First Symptom: 04/94
Dx: 07/06
betin
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
ALBERTO REGGIARDO Male, 61 years Talavera de la Reina, Toledo First Symptom: 04/07
MARIJUANA
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
DIANE RIPORTELLA Female, 61 years Egg Harbor Township, NJ First Symptom: 11/06
Dx: 09/07
buddyr
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
LLOYD ROGERS member since
Tom n WA
Sex: M
Data Quality: 0 stars
ALS: 29 yrs
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
WILLIAM ROGERS Male, 57 years Chehalis, WA First Symptom: 01/88
Dx: 05/08
PAYUM
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: severe
PAM RUCKER Female, 59 years AIKEN, SC First Symptom: 05/04
Dx: 05/05
docraab
Sex: M
Data Quality: 1 star
ALS: 6 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Chad Raab Male, 44 years Houston, TX First Symptom: 10/10
Dx: 06/12
msradcliffe
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Michael Radcliffe Male, 55 years Timonium, MD First Symptom: 01/08
Dx: 01/09
lwr1
Sex: M
Data Quality: 0 stars
ALS: 20 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Larry W. Rader Male, 77 years Avon Lake, OH First Symptom: 03/97
Dx: 05/98
Indyace
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Terry Radke Male, 69 years Bloomington, IN First Symptom: 05/09
Dx: 08/09
blovesp
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
Peggy Ragan Female, 75 years VA, United States First Symptom: 05/05
Dx: 03/08
mountainrain
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Brian Rainwater Male, 60 years Westminster, CO First Symptom: 09/07
Dx: 06/08
smileynyc
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Peter Ramirez Male, 79 years NY, NY First Symptom: 02/07
Dx: 11/07
piero
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Pierangelo Ramponi Male, 49 years Bolligen, Bern First Symptom: 07/06
Dx: 12/07
kate03
Sex: F
Data Quality: 2 stars
ALS: 2 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Susan Randles Female, 55 years Mineral City, OH First Symptom: 01/06
Dx: 01/07
Cathy
Sex: F
Data Quality: 1 star
ALS: 6 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: none
Legs: severe
Cathy Rankin Female, 57 years Victoria, Canada First Symptom: 08/03
Dx: 01/05