Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Dave in WV
Sex: M
Data Quality: 0 stars
ALS: 34 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
Dave Queen Male, 57 years Wayne , WV First Symptom: 06/83
Dx: 02/86
Bar BQ
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: mild
Legs: moderate
Blain Quillin Male, 62 years Dansville, MI First Symptom: 06/06
Dx: 04/07
tats4me
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Alexis Quinn Female, 43 years TX, United States First Symptom: 02/06
Dx: 02/07
Rquiroz
Sex: M
Data Quality: 1 star
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Ric Quiroz Male, 61 years Alhambra, CA First Symptom: 06/05
Dx: 10/07
fangq888
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
fang qiang member since