Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
poniek
Sex: M
Data Quality: 2 stars
ALS: 15 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: severe
Krzysztof Poniecki Male, 54 years Lodz, Poland First Symptom: 07/02
Dx: 10/03
FultonFin
Sex: M
Data Quality: 1 star
ALS: 11 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Scott Poole Male, 54 years Lancaster, PA First Symptom: 05/06
Dx: 02/07
johnpp
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
John Poorman Male, 67 years Schoharie, NY First Symptom: 01/12
Dx: 07/13
fla-cherie
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Cherie Pophal Female, 60 years Molino, FL First Symptom: 02/05
Dx: 02/06
red wine
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Audrey Porter Female, 63 years NC, United States First Symptom: 07/06
Dx: 03/07
Joel Porter
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: mild
Chest: mild
Legs: mild
Joel Porter Male, 68 years Austin, TX First Symptom: 08/04
Dx: 07/05
anniep65
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: none
Legs: severe
Annie Portz Female, 70 years eldora, IA First Symptom: 01/06
Dx: 04/06
Kellygirl04
Sex: F
Data Quality: 1 star
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Debbie Post Female, 61 years byram, NJ First Symptom: 06/08
Dx: 07/10
jdpottinger
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
Jessica Pottinger Female, 59 years Tucson, AZ First Symptom: 03/04
Dx: 01/05
ifaredfisher
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Eric Powell Male, 42 years NC, United States First Symptom: 06/10
Dx: 12/10
Carol
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Carol Preiser Female, 69 years Manchester, TN First Symptom: 04/05
Dx: 01/06
Gusprieto
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: moderate
Legs: severe
Gus Prieto Male, 53 years Los Angeles , CA First Symptom: 02/13
Dx: 05/13
prochnavy
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Wendy Prochnavy member since
joane53
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap Feeding tube
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
Joane Props Female, 64 years Logan, OH First Symptom: 01/08
Dx: 10/08
Sprosch
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Scott Prosch Male, 56 years Scottsdale, AZ First Symptom: 06/05
Dx: 03/06
tproudfoot
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Ventilator Feeding tube
Bulbar: severe
Arms: mild
Chest: severe
Legs: mild
Tony Proudfoot Male, 67 years Pointe Claire, Canada First Symptom: 10/06
Dx: 04/07
Others like me
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Roger Przybyla Male, 64 years Cabot, PA First Symptom: 04/08
Dx: 07/08
LaPuente
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Randall Pultz Male, 58 years West Covina, CA First Symptom: 12/04
Dx: 01/07
Mike
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Mike Purdue Male, 66 years Hungerford, United Kingdom First Symptom: 07/05
Dx: 04/06
lucrecia
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Feeding tube
Bulbar: severe
Arms: moderate
Chest: mild
Legs: moderate
Leslie de Palomares Female, 73 years Caracas, Estado Miranda First Symptom: 02/07
Dx: 05/07