Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Tashababy
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
J O Female, 75 years CA, United States First Symptom: 05/09
Dx: 07/10
641SUNFLOWER
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Toby O'Brien Male, 51 years Tampa, FL First Symptom: 03/05
Dx: 08/05
pobf
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
patrick O'Brien Male, 42 years MD, United States First Symptom: 11/04
Dx: 05/05
joyinals
Data Quality: 0 stars
ALS: 17 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Connie O'Donnell First Symptom: 08/00
Dx: 03/01
svodonovan
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
Sheila O'Donovan Female, 72 years Delray Beach, FL First Symptom: 01/06
Dx: 09/06
Hokuspocus
Sex: M
Data Quality: 0 stars
ALS: 24 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Frank John O'Gara Jr. Male, 58 years Winchester , CA First Symptom: 11/92
Dx: 02/93
ChristianO'Shea
Sex: M
Data Quality: 1 star
ALS: 21 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: mild
Christian O'Shea Male, 51 years Millville, NJ First Symptom: 06/96
Dx: 06/96
N33N54
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
noreen O'shea/stratton Female, 62 years GULF SHORES, AL First Symptom: 05/07
Dx: 10/09
allaboutlisa
Sex: F
Data Quality: 1 star
ALS: 6 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
LISA OLSSON Female, 45 years Lake Oswego, OR First Symptom: 11/03
Dx: 05/04
Hope for the future
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: severe
Wanda ONeal Female, 59 years Henderson, NV First Symptom: 01/06
Dx: 07/07
mgt123
Sex: F
Data Quality: 1 star
ALS: 14 yrs
Wheelchair
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Margaret ONeill Female, 57 years Staten Island, NY First Symptom: 11/02
Dx: 08/03
froghollow
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
MICHAEL OYER 57 years virginia beach, VA First Symptom: 09/06
Dx: 07/07
horseluvr1224
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Paula Oakes Female, 54 years PA, United States First Symptom: 06/07
Dx: 04/09
Dorothy Driskill
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Dorothy Obrien Female, 66 years Corvallis, OR First Symptom: 07/06
Dx: 04/07
MOMMIE2ASHNICK
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Bobbie Oglesby Female, 36 years Bowling Green, OH First Symptom: 06/06
Dx: 02/07
TtWwOo
Sex: M
Data Quality: 2 stars
ALS: 9 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Thomas Ohlson Male, 52 years FL, United States First Symptom: 05/05
Dx: 10/05
Melanie
Sex: F
Data Quality: 2 stars
ALS: 22 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
Melanie Olsen Female, 52 years Midlothian , VA First Symptom: 05/95
Dx: 05/97
LianneGoes
Sex: F
Data Quality: 2 stars
ALS: 2 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Lianne Oosthoek Female, 55 years Goes, Zeeland First Symptom: 08/08
Dx: 03/09
DeaerTom
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Thomas Orr 82 years Tucson, , AZ First Symptom: 02/05
Dx: 11/06
EddieO
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Eddie Ortiz Male, 64 years Santa Rosa, CA First Symptom: 01/06
Dx: 03/07