Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
runningmum7
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap
Bulbar: none
Arms: none
Chest: none
Legs: mild
Teresa Del Negro Female, 54 years FL, United States First Symptom: 07/14
Dx: 12/14
karendinardo
Sex: F
Data Quality: 1 star
ALS: 8 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Karen Di Nardo Female, 79 years East Rutherford, NJ First Symptom: 03/09
Dx: 04/11
MARNAV60
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
MARY NAVARRO Female, 57 years CHINO HILLS, CA First Symptom: 12/07
Dx: 01/09
Dorgate
Sex: M
Data Quality: 1 star
ALS: 38 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
The NV Kid Male, 86 years NV, United States First Symptom: 07/79
Dx: 04/13
emon
Data Quality: 0 stars
ALS: 1 yr
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: severe
Raymond Nadon First Symptom: 07/06
Dx: 12/06
BeachPower
Sex: M
Data Quality: 2 stars
ALS: 12 yrs
Ventilator Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Gerald Nasello Male, 73 years Gulf Shores/Orange Beach, AL First Symptom: 01/05
Dx: 06/05
Adriana Nato
Sex: F
Data Quality: 1 star
ALS: 9 yrs
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Adriana Nato Female, 43 years Casa Branca, São Paulo First Symptom: 11/07
Dx: 12/08
Bob Naugle
Sex: M
Data Quality: 1 star
ALS: 19 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
Robert Naugle Male, 76 years Seven Points, TX First Symptom: 10/97
Dx: 02/00
calendarqueen
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Kelly Navan Female, 55 years Philadelphia, PA First Symptom: 05/07
Dx: 09/09
Steve and indy
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Steve Neely member since
queenbeefor3
Sex: F
Data Quality: 1 star
ALS: 15 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
Kimberly Nelson Female, 53 years Castle Rock, CO First Symptom: 01/02
Dx: 07/03
Judy
Sex: F
Data Quality: 1 star
ALS: 23 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: none
Legs: severe
Judy Nephew Female, 72 years Fertile, MN First Symptom: 01/94
Dx: 10/95
livinginboji
Sex: F
Data Quality: 1 star
ALS: 9 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: none
Cheryll Neppl Female, 61 years Spirit Lake, IA First Symptom: 06/08
Dx: 10/08
pijin
Sex: M
Data Quality: 0 stars
ALS: 18 yrs
Bi-Pap
Bulbar: none
Arms: moderate
Chest: mild
Legs: mild
Peter Newbery Male, 87 years Liphook, United Kingdom First Symptom: 07/99
Dx: 05/02
newklt
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Tom Newcombe Male, 74 years Rimbey, AB First Symptom: 03/06
Dx: 07/07
newk
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Tom Newcombe Male, 74 years Rimbey, AB First Symptom: 04/06
Dx: 07/07
SirIsaac
Sex: M
Data Quality: 2 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Kirk Newton Male, 65 years Coudersport, PA First Symptom: 01/97
Dx: 06/09
AugieNieto
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Augie Nieto Male, 59 years Corona del mar, CA First Symptom: 07/04
Dx: 03/05
hokie
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
Brian Nikolich Male, 35 years Simpsonville, SC First Symptom: 01/07
Dx: 03/07
alskvinna
Sex: F
Data Quality: 0 stars
PLS: 9 yrs
Feeding tube
Bulbar: severe
Arms: none
Chest: mild
Legs: none
Ann-Christin Nilsson Female, 61 years boden, norrbotten First Symptom: 06/08
Dx: 03/09