Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
tantalus1
Sex: F
Data Quality: 0 stars
ALS: 14 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: severe
Violet Jones-Medusky Female, 65 years honolulu, HI First Symptom: 09/02
Dx: 10/06
Swiggy
Sex: F
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
MARIE MACDONAGH Female, 63 years Wakefield , West Yorkshire First Symptom: 09/01
Dx: 01/03
dr don
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap Feeding tube
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
DON MARTIN Male, 69 years somerville, MA Dx: 08/05
horse
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: none
Legs: severe
MARJORIE MARTIN Female, 61 years CLATSKANIE, OR First Symptom: 07/07
Dx: 11/06
Clive
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
CLIVE MAYHEW Male, 64 years United Kingdom First Symptom: 11/05
Dx: 05/06
TMAN
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
JAMES MCELROY member since
PMCELWEE
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
PEGGY MCELWEE member since
dave m
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
DAVE MEYERS Male, 85 years member since
TOMM
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
TOM MIKOLAJCIK Male, 71 years SC, United States member since
PJM
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
PAUL MILLER member since
LeeDX
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
LEE MONTGOMERY Male, 62 years Fort Jones, CA First Symptom: 12/05
Dx: 03/07
seanmucci
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: moderate
Legs: moderate
SEAN MUCCI Male, 55 years medford, MA First Symptom: 03/06
Dx: 06/07
Chellaston
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
James Mace 77 years Denton, TX member since
rac33jac
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
Jim Mackinnon First Symptom: 01/04
Dx: 08/04
lmacknik
Sex: M
Data Quality: 1 star
ALS: 16 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: mild
Chest: moderate
Legs: moderate
Lou Macknik Male, 75 years Canton, GA First Symptom: 04/01
Dx: 11/05
madgord
Sex: M
Data Quality: 0 stars
ALS: 33 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: moderate
Gord Madsen Male, 79 years Saskatoon, Canada First Symptom: 04/84
Dx: 02/88
ALSFNMEUP
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Greg Magie Male, 53 years San Marcos, CA First Symptom: 10/04
Dx: 08/05
Tommy Maker
Sex: M
Data Quality: 2 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Roch Maher Male, 55 years London, Middlesex First Symptom: 12/07
Dx: 06/09
Mypromis
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Lori Mai Female, 32 years berlin, berlin First Symptom: 09/06
Dx: 10/07
Pete-Air
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
Peter Maijstré Male, 51 years Schiedam, Netherlands First Symptom: 05/05
Dx: 01/07