Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
osvaldirde
Sex: M
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
OSVALDIR DE LIMA DOS PASSOS Male, 53 years RIBEIRÃO PIRES, SÃO PAULO First Symptom: 10/01
Dx: 12/02
mdlfv
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Maximo De Leon member since
JUSTJPL2
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
JAY LALIBERTE Male, 62 years SOUTHBRIDGE, MA First Symptom: 12/09
Dx: 04/10
ML60
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
MARC LEVISON member since
ronniel1338
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Wheelchair
Bulbar: none
Arms: none
Chest: none
Legs: moderate
RON LEWMAN Male, 73 years Fall Creek, OR First Symptom: 04/09
Dx: 11/09
TAJ10DER
Sex: M
Data Quality: 0 stars
PMA: 9 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
KIERAN LYNCH Male, 65 years marmora, NJ First Symptom: 10/07
Dx: 02/08
tracylac
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Tracy LaCoy Female, 42 years Sault Ste Marie, MI First Symptom: 01/07
Dx: 10/07
Dude Gehrig
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Timothy LaFollette Male, 31 years Greensboro, NC First Symptom: 11/08
Dx: 06/09
ireckon
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Dave LaRue Male, 48 years colorado springs, CO First Symptom: 05/05
Dx: 07/07
merelyme
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Michelle LaRue Female, 62 years Rutland, VT First Symptom: 09/07
Dx: 07/08
jmlasorsa
Sex: F
Data Quality: 0 stars
ALS: 20 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Julie LaSorsa Female, 53 years Lawton, OK First Symptom: 05/97
Dx: 07/98
Wayne Lampe
Sex: M
Data Quality: 2 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
Wayne Lampe Male, 56 years Palm Coast, FL First Symptom: 09/05
Dx: 01/06
Caleb
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
David Lane Male, 55 years AL, United States First Symptom: 03/03
Dx: 11/04
Domino59
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Wheelchair
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: severe
Dirk Langenhan Male, 47 years Maintal, Germany First Symptom: 09/04
Dx: 06/05
Rae
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
Bonnie Larson Female, 75 years Minneapolis, MN First Symptom: 10/04
Dx: 12/06
dbl30569
Sex: M
Data Quality: 2 stars
ALS: 4 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
Donald Larson Male, 43 years Grand Junction, CO First Symptom: 01/05
Dx: 08/06
Susan
Sex: F
Data Quality: 0 stars
ALS: 4 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
Susan Larson Female, 50 years Rogers, AR First Symptom: 11/01
Dx: 05/02
albert.lau
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Albert Lau Male, 67 years Singapore, Singapore First Symptom: 06/07
Dx: 12/07
OregonWayne
Sex: M
Data Quality: 1 star
ALS: 14 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Wayne Lauman Male, 54 years Milwaukie, OR First Symptom: 06/97
Dx: 02/07
MagicMarkus
Sex: M
Data Quality: 2 stars
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Marc Lavigne Male, 50 years Ste-Julie, QC First Symptom: 09/07
Dx: 02/10