Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Mesakicker7
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
mark Kelly Male, 38 years Queen Creek, AZ First Symptom: 10/08
Dx: 04/09
HUMMINGBIRD19
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Karen KELLY Female, 43 years Greensboro, NC First Symptom: 11/09
Dx: 08/10
feebee
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
DENNIS KING 83 years plymouth, United Kingdom member since
bellababy
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
RONALD KING member since
TIM K.
Data Quality: 0 stars
ALS: 20 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
TIM KOKOJAN First Symptom: 09/97
Dx: 08/05
annakay
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
ANNA KOVACEV First Symptom: 11/06
dkowalsky
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
DOLORES KOWALSKY Female, 80 years First Symptom: 07/09
Dx: 03/11
Alliswell
Sex: M
Data Quality: 2 stars
PMA: 11 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Alliswell KPK Male, 72 years Bangalore, Karnataka First Symptom: 11/05
Dx: 12/07
mkrier
Data Quality: 0 stars
ALS: 20 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: moderate
Chest: severe
Legs: severe
MARY KRIER First Symptom: 07/97
Dx: 12/98
Coolpete
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: mild
Legs: severe
Peter Kalivati Male, 50 years Upper Hutt, Wellington First Symptom: 04/06
Dx: 12/06
Kappy4
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Ed Kappesser Male, 75 years TN, United States First Symptom: 03/15
Dx: 01/16
canmark
Sex: M
Data Quality: 2 stars
ALS: 4 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Mark Kari Male, 49 years Greater Toronto Area, ON First Symptom: 09/12
Dx: 07/13
Narges Karimi
Sex: F
Data Quality: 3 stars
ALS: 4 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Narges Karimi Tehrani Female, 65 years Tehran, Tehran First Symptom: 01/08
Dx: 09/09
mikel4golf
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Michael Karjala Male Belleville, MI First Symptom: 03/09
Dx: 08/09
Anna65
Sex: F
Data Quality: 1 star
ALS: 25 yrs
Ventilator Wheelchair Feeding tube
Bulbar: none
Arms: moderate
Chest: moderate
Legs: moderate
Anna-Karin Karlsson Female, 52 years Ojebyn, Norrbotten First Symptom: 01/92
Dx: 08/98
robert karp
Data Quality: 0 stars
PLS: 9 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
robert Karp First Symptom: 07/08
Dx: 11/09
dpkatch
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Donna Katcher Female, 58 years PA, United States First Symptom: 09/04
Dx: 06/05
actualized
Sex: M
Data Quality: 2 stars
ALS: 2 yrs
Ventilator Wheelchair
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Jerry Kaufman Male, 59 years Surry, ME First Symptom: 11/05
Dx: 11/06
alperstein
Sex: M
Data Quality: 3 stars
ALS: 28 yrs
Ventilator Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Alper Kaya Male, 56 years Izmir, Turkey First Symptom: 01/89
Dx: 08/90
skeetz
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
sean Keating Male, 60 years Milford, CT member since