Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
DZac
Sex: M
Data Quality: 0 stars
ALS: 26 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Zac David J. Male, 57 years Adelaide, Australia First Symptom: 01/91
Dx: 12/95
KEN
Sex: M
Data Quality: 0 stars
ALS: 24 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
KENNETH JAMES Male, 77 years Marshville, NC First Symptom: 01/93
Dx: 03/95
LindaPfeil
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Wheelchair
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Linda JMKP Female, 62 years Woodbury, MN First Symptom: 01/04
Dx: 01/06
LANIE
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
ELAINE JOLLIFF Female, 55 years OH, United States First Symptom: 07/97
Dx: 07/99
SIONZ
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
SIONED JONES Female, 45 years CAERNARFON, Gwynedd First Symptom: 12/03
Dx: 10/07
Mykljak
Sex: M
Data Quality: 0 stars
ALS: 21 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Michael Jack Male, 50 years Alexandria, VA First Symptom: 11/95
Dx: 03/97
eeno_3
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Aline Jackson Female, 69 years Arkadelphia, AR First Symptom: 05/06
Dx: 03/07
Blackbird
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Merle Jackson Female, 69 years Wellington, New Zealand First Symptom: 08/04
Dx: 03/05
shane
Sex: M
Data Quality: 0 stars
PMA: 12 yrs
Bulbar: moderate
Arms: mild
Chest: mild
Legs: mild
Richard Jackson Male, 83 years w palm beach, fla First Symptom: 03/05
Dx: 03/06
ilford
Sex: M
Data Quality: 2 stars
ALS: 20 yrs
Wheelchair
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Herman Jacobs Male, 66 years Montreal, QC First Symptom: 12/96
Dx: 07/97
KenJJr
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: mild
Chest: moderate
Legs: mild
Ken Jacobsen Jr Male, 56 years Chicago, IL First Symptom: 05/06
Dx: 01/07
Kelli_Jacobson
Sex: F
Data Quality: 2 stars
ALS: 2 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Kelli Jacobson Female, 48 years WA, United States First Symptom: 07/15
Dx: 09/16
Jake
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Ray Jakabosky 61 years Hanford, CA First Symptom: 05/04
Dx: 07/05
centurion
Data Quality: 0 stars
ALS: 13 yrs
Feeding tube
Bulbar: mild
Arms: moderate
Chest: none
Legs: none
Darrin James 51 years Massachusetts First Symptom: 06/04
Dx: 08/06
Gabri
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Doni James Female, 74 years Sutter Creek, CA First Symptom: 03/07
Dx: 08/07
lookingup2
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: moderate
Warren James First Symptom: 04/05
Dx: 02/07
gjarriel
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
George Jarriel Male, 72 years Charleston, SC First Symptom: 04/06
Dx: 07/06
infrared
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Gale Jarvis Male, 84 years Brazil , IN member since
djayne23
Sex: M
Data Quality: 0 stars
ALS: 29 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
David Jayne Male, 56 years Atlanta, GA First Symptom: 11/87
Dx: 05/88
TJFaith66
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Bulbar: mild
Arms: moderate
Chest: none
Legs: mild
Tony Jaynes Male, 41 years Battle Creek, MI First Symptom: 12/05
Dx: 04/06