Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
STUMP
Sex: M
Data Quality: 2 stars
ALS: 15 yrs
Bi-Pap Feeding tube
Bulbar: none
Arms: none
Chest: none
Legs: none
JIMMY INGRAM Male, 56 years wetumpka, AL First Symptom: 09/02
Dx: 11/05
scottish1
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: none
Mary Iadipaolo Female, 78 years Holly, MI First Symptom: 08/08
Dx: 10/09
Spock
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Rene Ibarra Male, 53 years Tijuana, BC, Mexico First Symptom: 03/06
Dx: 12/06
foster
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Alan Inglis Male, 89 years Melbourne, FL member since
sherwinpaintguy
Sex: M
Data Quality: 1 star
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Kent Ingram Male, 52 years Fort Wayne, IN First Symptom: 06/11
Dx: 11/11
Parasu47
Data Quality: 0 stars
ALS: 17 yrs
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
Kiran Kumar Inguva First Symptom: 09/00
Dx: 09/00
22_with_als
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Kim Inslee Female, 31 years North Brookfield, MA First Symptom: 08/04
Dx: 08/08
irslow
Sex: M
Data Quality: 2 stars
PLS: 10 yrs
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Dave Irvine Male, 59 years Seattle, WA First Symptom: 10/06
Dx: 11/09
miwasaki0320
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Manabu Iwasaki member since
speechlesskate
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
Kathleen Iyalla Female, 70 years New York, NY First Symptom: 07/05
mdimad7
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
umme imad Female, 62 years aurangabad, maharashtra member since