Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Robert Hill
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: severe
Robert Hill Male, 79 years East Palo Alto, CA First Symptom: 08/05
Dx: 11/06
chick_tx
Sex: F
Data Quality: 0 stars
ALS: 14 yrs
Bi-Pap
Bulbar: none
Arms: mild
Chest: mild
Legs: mild
Christine Cooper-Hicks Female, 42 years Conroe , TX First Symptom: 11/02
Dx: 07/04
dewafe
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Doug H Male, 57 years United States First Symptom: 08/10
Dx: 02/12
ruh00
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
ROBERT U. HATCHETTE member since
smokyrod
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
RODNEY HELFRICH Male, 51 years MEDICINE HAT, Canada First Symptom: 10/01
Dx: 03/03
holo68
Sex: M
Data Quality: 0 stars
ALS: 23 yrs
Bi-Pap
Bulbar: none
Arms: mild
Chest: none
Legs: none
HOWARD HOSKINS Male, 68 years Newaygo, MI First Symptom: 01/94
Dx: 10/06
BRIAN HUGHES
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
BRIAN HUGHES member since
gontamen2
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Ko Ha member since
Cécile
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Cécile Haché Female, 61 years Inkerman, NB First Symptom: 09/05
Dx: 02/07
tim_hack
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Ventilator Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Tim Hacker Male, 64 years Paris, TN First Symptom: 10/04
Dx: 02/05
Dave Hagan
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Dave Hagan Male, 63 years Bonne Terre, MO First Symptom: 12/03
Dx: 10/04
GPa
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Don Hageman Male, 67 years Lansing, MI First Symptom: 01/06
Dx: 09/07
giacomoh
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: mild
Legs: moderate
Jack Hains Male, 66 years Hamburg, NY First Symptom: 09/08
Dx: 02/09
Sig
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: severe
Diane Hale Female PA, United States First Symptom: 12/06
Dx: 11/07
pigiron308
Sex: M
Data Quality: 0 stars
ALS: 18 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
James Hall Male, 75 years Arlington, VA First Symptom: 09/99
Dx: 08/01
krisztinah2o
Sex: F
Data Quality: 0 stars
ALS: 14 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Krisztina Hall Female, 49 years Calgary, AB First Symptom: 09/03
Dx: 04/08
lindah
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Linda Hall member since
fhallager
Sex: M
Data Quality: 1 star
ALS: 6 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Finn Hallager Male, 55 years Mårslet, Denmark First Symptom: 03/05
Dx: 03/06
whaller
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
William Haller Male, 72 years Andover, NJ First Symptom: 09/06
Dx: 09/07
jhallowell
Sex: M
Data Quality: 2 stars
ALS: 15 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
Jeff Hallowell Male, 53 years maize , KS First Symptom: 08/02
Dx: 08/03