Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
heatherbell
Sex: F
Data Quality: 2 stars
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
Mary G. Female, 55 years Northern Ireland, United Kingdom First Symptom: 12/07
Dx: 02/09
jjr
Sex: F
Data Quality: 0 stars
ALS: 4 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: severe
JENNIFER GIBSON Female, 57 years livingstone, Zambia First Symptom: 04/05
Dx: 03/06
61LARK
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
HAROLD GLEISBERG member since
greenspans
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
STEPHEN GREENSPAN Male, 67 years Cupertino, CA First Symptom: 08/02
Dx: 10/05
FL.BUG MAN
Sex: M
Data Quality: 0 stars
PLS: 26 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
JAMES GRIENER Male, 77 years FL, United States First Symptom: 04/91
Dx: 04/91
Benja
Sex: M
Data Quality: 0 stars
ALS: 16 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: none
Legs: severe
Benjamin Galiana Male, 49 years Merida , Spain First Symptom: 05/01
Dx: 08/02
lovers25
Sex: F
Data Quality: 3 stars
PLS: ? yrs
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
Karen Gallimore Female, 61 years Downingtown, PA Dx: 11/12
magaro
Sex: M
Data Quality: 0 stars
ALS: 14 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Manuel Gancedo Male, 51 years Santander, Cantabria First Symptom: 05/03
Dx: 08/03
Tater
Sex: M
Data Quality: 0 stars
ALS: 21 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: none
Legs: severe
Mike Gantz Male, 67 years Donnelly, ID First Symptom: 09/96
Dx: 07/97
Gill_G
Sex: M
Data Quality: 2 stars
ALS: 3 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
Guillermo Garcia Male, 42 years Floresville, TX First Symptom: 09/14
Dx: 11/15
jgopus
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Jerry Garcia Male, 58 years Laredo, TX First Symptom: 03/04
Dx: 02/05
Wandansc
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Wanda Gardner Female, 70 years Swansea, SC First Symptom: 10/05
Dx: 01/07
ng2gd
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Nancy Garrett First Symptom: 09/07
Dx: 09/08
rgarrett
Sex: F
Data Quality: 0 stars
ALS: 15 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: severe
Legs: severe
Rhonda Garrett Female, 50 years Dalton, GA First Symptom: 04/02
Dx: 03/03
william_garrett
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
william Garrett Male, 63 years atlanta, GA Dx: 11/04
lorick89
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
Rick Garrison member since
Empire Grove
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: none
Chest: moderate
Legs: mild
Howard Gary Male, 67 years East Poland, ME First Symptom: 06/06
Dx: 12/09
sissybuck
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Luther Gaskill member since
lgates
Sex: F
Data Quality: 1 star
ALS: 10 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: severe
Legs: severe
Linda Gates Female, 61 years Shell Rock, IA First Symptom: 02/07
Dx: 09/07
Mike011
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: severe
Michel Gauthier Male, 49 years Sainte-Julie, QC First Symptom: 11/07
Dx: 08/10