Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
notlimah47
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
JAMES FENTON Male, 69 years ankeny, IA Dx: 06/10
Laerte
Sex: M
Data Quality: 0 stars
PLS: 17 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
LARTE FERNANDES Male, 64 years Capivari, São Paulo First Symptom: 08/99
rommel
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
GONZALEZ FERNANDO member since
NEARNY
Sex: M
Data Quality: 0 stars
ALS: 24 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
L. PAUL FIEDLER Male, 86 years APPLE VALLEY, CA First Symptom: 03/93
Dx: 10/96
TOM FLICKINGER SR
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
TOM FLICKINGER SR Male, 57 years MAYS LANDING, NJ First Symptom: 02/06
Dx: 10/06
ERIC FOX 88
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
ERIC FOX Male, 40 years Grandville, MI First Symptom: 09/04
Dx: 05/07
hopefull
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
GEOFF FRANKLIN Male, 61 years BRISBANE, Australia First Symptom: 03/04
Dx: 05/05
STEELER
Sex: M
Data Quality: 2 stars
ALS: 10 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
CHRIS FREED Male, 54 years TOWANDA, KS First Symptom: 05/07
Dx: 04/08
LazyBoyGuy
Sex: M
Data Quality: 2 stars
ALS: 4 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Don Faeth Male, 60 years NW, OH First Symptom: 09/05
Dx: 03/08
robnmar
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Bernie Farbacher Female, 71 years Pittsburgh, PA First Symptom: 05/06
Dx: 11/07
CH Farley
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Dan Farley Male Township of Buena Vista, WI First Symptom: 06/06
Dx: 03/09
gigitommie
Sex: F
Data Quality: 2 stars
ALS: 10 yrs
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Tommie Farley Female, 49 years Rector, AR First Symptom: 07/07
Dx: 09/08
newtons1971
Sex: M
Data Quality: 2 stars
ALS: 4 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Tom Farrell Male, 64 years Raymond, NH First Symptom: 06/13
Dx: 09/15
ZenArcher
Sex: M
Data Quality: 1 star
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Jeff Faull Male, 43 years McEwensville, PA First Symptom: 09/05
Dx: 05/07
luna
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Lubna Fayyaz Female, 57 years lahore, Pakistan First Symptom: 05/05
Dx: 10/06
Zena
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Zoe Ferguson 65 years london, United Kingdom First Symptom: 12/04
Dx: 07/05
quilter
Sex: F
Data Quality: 2 stars
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Carrie Fernald Female, 54 years WA, United States First Symptom: 08/02
Dx: 09/04
Argia
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Arrieta Fernando Male, 40 years Donostia, Spain First Symptom: 12/06
Dx: 06/07
LindaLou57
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Linda Ferrante Female, 60 years Munroe Falls, OH First Symptom: 05/09
Dx: 08/10
Joe F
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Joseph Ferraro Male, 41 years Levittown, NY First Symptom: 05/07
Dx: 01/08