Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
LINDA741
Sex: F
Data Quality: 1 star
ALS: 5 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
LINDA ESTRADA Female, 59 years SPRINGFIELD, OR First Symptom: 11/04
Dx: 03/06
BillyBob
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
James Eads Male, 83 years Dixon, MO First Symptom: 08/06
Dx: 06/09
athenia
Sex: M
Data Quality: 0 stars
ALS: 21 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: severe
Michael Earley Male, 72 years Cuffley/Goffs Oak, Herts First Symptom: 03/96
Dx: 12/96
ALSguySweden
Sex: M
Data Quality: 2 stars
ALS: 14 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Kenth Ebermark Male, 55 years RYDEBÄCK (HELSINGBORG), In the south of Sweden First Symptom: 01/03
Dx: 06/07
Maite
Sex: F
Data Quality: 2 stars
ALS: 27 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Marisa Echevarria Female, 66 years Sodupe, Bizkaia First Symptom: 10/89
Dx: 05/09
Sawce
Sex: F
Data Quality: 0 stars
ALS: 4 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Sheila Edmund Female, 63 years Columbus, OH First Symptom: 01/06
Dx: 10/08
Pryor Creek Kid
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Ventilator
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
Ron Edwards Male, 60 years Pryor, OK First Symptom: 09/05
Dx: 05/06
Eikrem
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Pål Eikrem member since
Nevadasweets
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Bob Eilers Male, 76 years Las Vegas, NV First Symptom: 03/07
Dx: 02/07
geo31
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
George Eisler Male, 64 years Reynoldsburg, OH First Symptom: 04/04
Dx: 09/04
eldrijt
Sex: M
Data Quality: 1 star
ALS: 17 yrs
Bulbar: moderate
Arms: moderate
Chest: none
Legs: none
James Eldridge Male, 58 years Huntsville, AL First Symptom: 06/00
Dx: 03/03
skyspirit
Sex: M
Data Quality: 1 star
PLS: 6 yrs
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
Donald Elliott Male, 64 years Litchfield, MI First Symptom: 07/11
Dx: 08/15
danellis
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: none
Legs: moderate
Dan Ellis Male, 52 years orlando, FL First Symptom: 05/09
Dx: 02/10
MikeEllis
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Mike Ellis member since
surfnsail
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: none
Wes Ellsworth Male, 55 years Houston, TX First Symptom: 08/05
Dx: 08/06
Miss_Kitty
Sex: F
Data Quality: 2 stars
ALS: 9 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: severe
Jan Elser Female, 71 years Beaverton, OR First Symptom: 11/04
Dx: 06/09
WesternSwing
Sex: F
Data Quality: 0 stars
PMA: 12 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Shirley Emery Female, 80 years Coweta, OK First Symptom: 06/05
Dx: 05/06
mitchfirst
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: mild
Chest: mild
Legs: mild
Sheila Engdahl Female, 60 years Hull, MA First Symptom: 05/07
Dx: 02/08
Howdy
Sex: M
Data Quality: 2 stars
ALS: 17 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Howard English Male, 79 years Bloomfield, IN First Symptom: 01/00
Dx: 01/01
SunnyBrousErasmus
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Sunny Erasmus Female, 30 years Fort Worth, TX member since