Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
happyjd1620
Sex: F
Data Quality: 1 star
ALS: 7 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
JEANNETTE DARBY Female, 47 years lagrange, OH First Symptom: 06/10
Dx: 09/10
osvaldirde
Sex: M
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
OSVALDIR DE LIMA DOS PASSOS Male, 53 years RIBEIRÃO PIRES, SÃO PAULO First Symptom: 10/01
Dx: 12/02
Bear620
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Barry DEspain Male, 60 years Ogden, UT First Symptom: 10/06
Dx: 07/07
kumar
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
RATAN_kumar DUARI member since
SCOOBYDOO39
Sex: F
Data Quality: 0 stars
PMA: 11 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
ANGIE DUVAL Female, 49 years BLAKPOOL, United Kingdom First Symptom: 09/06
Dx: 12/08
smoothlines
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
John Da Ponte Male, 47 years QC, Canada First Symptom: 02/08
Dx: 03/09
pals nz
Sex: M
Data Quality: 1 star
ALS: 8 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Terry Dagnin Male, 61 years Auckland, New Zealand First Symptom: 03/09
Dx: 02/11
gailHD
Sex: F
Data Quality: 2 stars
ALS: 7 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Gail Dahlquist Female, 61 years Tempe, AZ First Symptom: 03/04
Dx: 10/07
XiaoTian
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
XinHua Dai member since
Erik
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: moderate
Erik Bjerre Dalum Male, 64 years Vejle, Denmark First Symptom: 04/03
Dx: 08/04
DannyD
Sex: M
Data Quality: 2 stars
ALS: 20 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Danny Dandignac Male, 58 years Leander, TX First Symptom: 03/97
Dx: 12/00
My New Voice
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: none
Chest: mild
Legs: none
Robert Daniel Male, 58 years Montgomery, AL First Symptom: 11/06
Dx: 09/08
CarolD
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: moderate
Legs: mild
Carol Daniels Female, 73 years Oregon City, OR First Symptom: 01/04
Dx: 06/06
gigi
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Gianni Danzo Male, 56 years Lessines, Belgium First Symptom: 04/05
Dx: 10/05
davi
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Davi Davi member since
DZac
Sex: M
Data Quality: 0 stars
ALS: 26 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Zac David J. Male, 57 years Adelaide, Australia First Symptom: 01/91
Dx: 12/95
HarleyJ
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Jeff Davidson Male, 71 years La Follette, TN First Symptom: 12/08
Dx: 05/09
kitkat2055
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Ventilator Wheelchair
Bulbar: mild
Arms: severe
Chest: severe
Legs: severe
Kathlean Davies Female, 48 years hamilton, ON First Symptom: 12/07
Dx: 01/09
X OUT ALS
Sex: M
Data Quality: 1 star
ALS: 26 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Ed Davis Male, 57 years Medford, OR First Symptom: 01/91
Dx: 02/96
jed81851
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
John Davis member since