Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
gcelo97
Sex: M
Data Quality: 0 stars
ALS: 14 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
GABRIEL CELORRIO Male, 52 years Argentina First Symptom: 12/02
Dx: 05/03
usmc67
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
JOHN CHAVOEN Male, 69 years FORT MYERS, FL First Symptom: 03/08
Dx: 12/09
CJL
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
CJL CJL member since
jackconrad
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
JACK CONRAD Male, 61 years MIDDLETOWN, PA First Symptom: 06/16
Dx: 05/16
David COPE
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
David COPE Male, 84 years San Juan Capistrano, CA First Symptom: 10/06
Dx: 04/07
joão_Correia
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
JOÃO CORREIA Male, 54 years Tangará da Serra, Mato Grosso First Symptom: 08/06
Dx: 08/08
IRENE2
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
IRENE COUTINHO Female, 63 years RIO DE JANEIRO, Brazil member since
bythesea
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: severe
Randy Cadonau Male, 62 years Lake Oswego, OR First Symptom: 06/09
Dx: 10/09
Dreamman
Sex: M
Data Quality: 1 star
ALS: 9 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Allon Cady Male, 74 years Pleasant hILL, IA First Symptom: 09/08
Dx: 05/10
Pattie
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Patricia Camarota Female, 71 years CLARKSVILLE, TN First Symptom: 11/03
Dx: 03/04
Morticia
Sex: F
Data Quality: 0 stars
ALS: 15 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
Esther Camp Female, 44 years Basingstoke , United Kingdom First Symptom: 11/01
Dx: 05/02
shada2945
Sex: M
Data Quality: 0 stars
ALS: 18 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Frank Campbell Male, 54 years Dahlonega, GA First Symptom: 12/98
Dx: 04/04
PAULC
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Paul Campbell Male, 60 years Dover, PA First Symptom: 10/06
Dx: 04/07
Mikie1950
Sex: F
Data Quality: 1 star
ALS: 8 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Michelene Campise Female, 67 years Friendswood, TX First Symptom: 02/09
Dx: 07/09
kcan57
Sex: M
Data Quality: 1 star
ALS: 14 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Keith Canady Male, 60 years Newark, DE First Symptom: 03/03
Dx: 11/03
canfiet
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Teresa Canfield Female, 49 years Wooster, OH First Symptom: 02/08
Dx: 01/09
miracleshappen
Sex: F
Data Quality: 1 star
ALS: 9 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Jody Canihan Female, 61 years CA, United States First Symptom: 12/07
Dx: 03/08
Charlie the Hero
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Charlie Canon Male, 37 years Brainerd, MN First Symptom: 01/09
Dx: 08/09
Alice
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: severe
Alice Canton Female, 60 years Angola, NY First Symptom: 08/04
Dx: 02/06
acarbajal945
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: none
Anthony Carbajal Male, 30 years Redlands, CA First Symptom: 03/13
Dx: 01/14