Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
DeElla
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Diann Black Female, 62 years Sagamore, MA First Symptom: 03/06
Dx: 04/08
liblaha
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Libor Blaha Male, 57 years Brno, Czech Republic First Symptom: 11/05
Dx: 06/06
Jeri Blair
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Jeri Blair Female, 72 years Beavercreek, OH First Symptom: 08/04
Dx: 02/07
Blanky0725
Sex: M
Data Quality: 0 stars
ALS: 15 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Robert Blankenhorn Male, 84 years Pottsville, PA First Symptom: 01/02
Dx: 11/05
frankb
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Frank Blankenship Male, 80 years Sandy Springs, GA First Symptom: 02/10
Dx: 11/10
cherryhurst
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: mild
James Blanton First Symptom: 04/07
Dx: 08/07
NealBlanton
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Neal Blanton member since
wmbsr1
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
William M. Blough, Sr. Male, 66 years Denham Springs, LA First Symptom: 04/03
Dx: 02/04
Bootie
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Brian Board First Symptom: 03/09
Dx: 06/09
kahuna
Sex: M
Data Quality: 1 star
ALS: 11 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Albert Bocanegra Male, 70 years North Plains, OR First Symptom: 08/06
Dx: 01/07
rcharlton
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: none
Richard Bogart Male, 45 years Toronto, Canada First Symptom: 01/05
Dx: 07/05
jbolser
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Jerry Bolser member since
dbondcst
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Janet Sue Bond member since
gregm
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Greg Bonfa member since
johnb
Sex: M
Data Quality: 0 stars
ALS: 21 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
John Bonnet Male, 62 years Kent, United Kingdom First Symptom: 07/92
Dx: 09/93
Spodfather
Sex: M
Data Quality: 1 star
ALS: 7 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
Chris Boon Male, 42 years St Helens, Merseyside First Symptom: 11/09
Dx: 07/10
tom
Sex: M
Data Quality: 2 stars
ALS: 21 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Tom Borchert Male, 77 years IA, United States First Symptom: 01/96
Dx: 05/98
instech
Sex: M
Data Quality: 0 stars
ALS: 21 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Mike Bougher Male, 53 years Benicia, CA First Symptom: 06/96
Dx: 07/98
ro44bo55
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Ronnie Bower Male, 55 years Lonsdale, MN First Symptom: 08/05
Dx: 02/06
liltne2
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Robert Bowers Male, 69 years Croswell, MI First Symptom: 11/11
Dx: 03/12