Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
fanappel
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Fredrik Appelgren Male, 45 years Sodertalje, Sweden First Symptom: 09/03
Dx: 05/04
Geordie36
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
George Armstrong Male, 73 years Poughkeepsie, NY First Symptom: 01/05
Dx: 06/07
Nelson1
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Nelson Armstrong Male, 78 years Demotte, IN First Symptom: 08/97
Dx: 04/04
healed
Sex: F
Data Quality: 2 stars
ALS: 17 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Victoria Armstrong Female, 70 years Peoria, AZ First Symptom: 06/00
Dx: 01/06
add
Sex: F
Data Quality: 0 stars
PMA: 11 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Britt-Christine Arnesson Abrahamsson Female, 63 years Sweden First Symptom: 01/06
Dx: 10/06
Jodikinz
Sex: M
Data Quality: 2 stars
PLS: 40 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Shayne Arsenault Male, 54 years Penticton, BC First Symptom: 07/77
Dx: 07/86
sriaravindan
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Anbarasi Arulselvan member since
salsa
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Tommy Asher Male, 64 years spokane, WA First Symptom: 08/03
Dx: 11/06
ashfieb
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
Barry Ashfield Male, 71 years Hessle, United Kingdom First Symptom: 01/04
Poida
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: none
Peter Ashfield Male, 66 years Melbourne, Australia First Symptom: 02/05
Dx: 08/05
Sue4607
Data Quality: 0 stars
ALS: 26 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: mild
Legs: severe
Sue Ashmore First Symptom: 03/91
Dx: 05/03
atanas
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Atanas Atanasov Male, 50 years Haskovo, Bulgaria First Symptom: 12/04
Dx: 08/05
atkinsja
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
Jerry Atkins Male, 66 years Athens, GA First Symptom: 04/05
Dx: 09/07
Winemaker
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: mild
Chest: mild
Legs: mild
Richard Auger Male, 62 years CT, United States First Symptom: 06/15
Dx: 05/15
Don
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Don Austin member since
cavel38
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
Chris Avel Male, 49 years Estherwood, LA First Symptom: 08/03
Dx: 05/06
Nadine Barbara
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Nadine Vallon Auderset Female, 45 years Yverdon-les-Bains, Switzerland First Symptom: 05/07
Dx: 02/08
billy9
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: moderate
thomas adamson Male, 60 years IL, United States First Symptom: 04/09
Dx: 12/09
danat
Data Quality: 0 stars
ALS: ? yrs
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
dan adkins member since
mairel
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
mark airel Male, 52 years liverpool, NY First Symptom: 08/03
Dx: 04/06