Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Mike_Jobe
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Mike Jobe Male, 65 years Marion, IL First Symptom: 03/15
Dx: 07/15
Kelli_Jacobson
Sex: F
Data Quality: 2 stars
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Kelli Jacobson Female, 48 years WA, United States First Symptom: 07/15
Dx: 09/16
Jcsorah320
Sex: F
Data Quality: 3 stars
ALS: 1 yr
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Judi Sorah Female, 61 years CLEVELAND, TN First Symptom: 05/15
johnfromyukon
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
john geringer Male, 49 years FL, United States First Symptom: 07/06
Dx: 04/08
SBDillon
Sex: M
Data Quality: 2 stars
ALS: 5 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Bobby Warner JR Male, 37 years Akron , OH First Symptom: 07/11
Dx: 10/11
SunnyBrousErasmus
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Sunny Erasmus Female, 30 years TX, United States member since
Kappy4
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
Ed Kappesser Male, 75 years TN, United States First Symptom: 03/15
Dx: 01/16
Winemaker
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap Feeding tube
Bulbar: moderate
Arms: mild
Chest: mild
Legs: mild
Richard Auger Male, 62 years CT, United States First Symptom: 06/15
Dx: 05/15
ellmooney
Sex: F
Data Quality: 1 star
ALS: 1 yr
Bulbar: none
Arms: mild
Chest: none
Legs: none
Ellen Mooney Female, 69 years AZ, United States First Symptom: 09/15
Dx: 09/16
ljc455
Sex: F
Data Quality: 1 star
ALS: 1 yr
Feeding tube
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Lucy Collins Female, 53 years Raleigh, NC First Symptom: 10/15
Dx: 10/16
KipWong
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Kip Wong Male, 60 years Renton, WA First Symptom: 08/12
Dx: 11/13
Troy_D
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Troy Davis Male, 56 years WA, United States First Symptom: 03/16
Dx: 04/16
cjewing2
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Bill Ewing Male, 62 years Hague, VA First Symptom: 08/15
Dx: 08/16
Fz950
Sex: F
Data Quality: 1 star
ALS: 1 yr
Bulbar: none
Arms: none
Chest: none
Legs: moderate
F Z Female, 49 years CA, United States First Symptom: 07/15
Dx: 08/16
jackconrad
Sex: M
Data Quality: 3 stars
ALS: <1 yr
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
JACK CONRAD Male, 60 years DUNCANNON, PA First Symptom: 06/16
Dx: 05/16
Newyorkrob
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: mild
Robin Mcumber Male, 62 years NY, United States First Symptom: 06/06
Dx: 07/08
Jodialeszka
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Blair Aleszka Male, 46 years Twin lake, MI First Symptom: 06/15
Dx: 11/15
RichL99
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Rich Lieberman Male, 53 years Greenwich , CT First Symptom: 05/14
Dx: 03/16
zarahnar
Sex: F
Data Quality: 2 stars
ALS: 2 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: mild
Carol Ziegler Female, 60 years Stanton, ND First Symptom: 07/14
Dx: 11/15
saintmic69
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Gary St.Laurent Male, 57 years AL, United States First Symptom: 01/12
Dx: 09/15