Welcome to the PatientsLikeMe ALS public registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Bodhisativa
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Bill Rutherford Male, 51 years ON, Canada member since
SandraJeanette
Sex: F
Data Quality: 2 stars
ALS: 1 yr
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Sandra Stanbery Female, 58 years Granby, MO First Symptom: 06/16
Dx: 12/16
Chefrob57
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Robert Heinz Male, 56 years seattle, WA First Symptom: 01/16
Dx: 04/16
leanne1773
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Leanne Female, 44 years BC, Canada member since
Mike_Jobe
Sex: M
Data Quality: 2 stars
ALS: 2 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Mike Jobe Male, 66 years Marion, IL First Symptom: 03/15
Dx: 07/15
Kelli_Jacobson
Sex: F
Data Quality: 2 stars
ALS: 2 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Kelli Jacobson Female, 48 years WA, United States First Symptom: 07/15
Dx: 09/16
Jcsorah320
Sex: F
Data Quality: 3 stars
ALS: 2 yrs
Wheelchair
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Judi Sorah Female, 61 years CLEVELAND, TN First Symptom: 05/15
johnfromyukon
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
john geringer Male, 49 years FL, United States First Symptom: 07/06
Dx: 04/08
SBDillon
Sex: M
Data Quality: 2 stars
ALS: 6 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Bobby Warner JR Male, 38 years Akron , OH First Symptom: 07/11
Dx: 10/11
SunnyBrousErasmus
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Sunny Erasmus Female, 30 years Fort Worth, TX member since
Kappy4
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: severe
Ed Kappesser Male, 75 years TN, United States First Symptom: 03/15
Dx: 01/16
Winemaker
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: mild
Chest: mild
Legs: mild
Richard Auger Male, 62 years CT, United States First Symptom: 06/15
Dx: 05/15
BobbyRayC
Sex: M
Data Quality: 2 stars
ALS: 2 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Ray Chandler Male, 59 years Headland, AL First Symptom: 07/15
Dx: 11/16
ellmooney
Sex: F
Data Quality: 2 stars
ALS: 1 yr
Bulbar: none
Arms: moderate
Chest: none
Legs: none
Ellen Mooney Female, 69 years AZ, United States First Symptom: 09/15
Dx: 09/16
ljc455
Sex: F
Data Quality: 1 star
ALS: 1 yr
Feeding tube
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Lucy Collins Female, 53 years Raleigh, NC First Symptom: 10/15
Dx: 10/16
KipWong
Sex: M
Data Quality: 3 stars
ALS: 5 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: severe
Legs: moderate
Kip Wong Male, 60 years Renton, WA First Symptom: 08/12
Dx: 11/13
Troy_D
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
Troy Davis Male, 56 years WA, United States First Symptom: 03/16
Dx: 04/16
cjewing2
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Bill Ewing Male, 62 years Hague, VA First Symptom: 08/15
Dx: 08/16
Fz950
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
F Z Female, 50 years CA, United States First Symptom: 07/15
Dx: 08/16
jackconrad
Sex: M
Data Quality: 3 stars
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
JACK CONRAD Male, 60 years MIDDLETOWN, PA First Symptom: 06/16
Dx: 05/16