I am fortunate that my medications keep the Temors (my major symptom) in check. Only when I am stressed do I feel some increased tremors and speach slowness. The most important therapy outside of medication is additude. A cheerful disposition is so important. If you are pain free, don't let the other symptoms get you down. It's easy for me to say since my symptoms are realatively mild. For those with more severe symptoms, try as best you can to remain positive.
Diagnosed with Parkinson in April 2008. You assume correctly if you think my handle indicates I like working with model railroads. I consider myself still in the early stages of this disease as my only symptom is tremors of the right arm and hand. My biggest concern as testified in the forums, is the effectiveness of medication. See a more detailed history in other details below. This profile is alway under review and change
I was originally diagnosed by a general neurologist who put me on Azilect. It did nothing for my tremors. We when to a second neurologist who is a PD specialist. He confirmed diagnosis and thought best to do nothing, regarding medication, until it got worse. My wife had contact with a research neurologist at a local university and we went there. The diagnosis was the same, but this doctor has the opposite philosophy regarding medications. He started me out on Mirapex. After one month - no change. We switched to a combination of Amantadine and Segeline (probably not spelled right). After another month still no progress. In about August or September we added Sinemet working slowly up to the target of 2 25/100 tabs 4 times a day. In December I reached the desired target and complained that the tremors still persist. He upped the dosage to 3 tabs 4 times a day, which target I just reached this week. It appears to resolve the tremors unless I am under stress.
My concern started when I updated my profile and noticed that I was on the top of the list in dosages of Sinemet. Then I started to ask questions here in the forums and this is where we are. I am "broadening my horizons" on the subject and trying to see if there are any other alternatives that I can suggest to the doctor.
Update 3-17-09: A recent visit to the Neurologist involved a discussion about how much is too much medication. It is his experience that patients can have as much as 3000mg daily and be in the safe/normal zone.
Update 8-27-12: Just a note to indicate that I intend to update my information soon. I have been too busy with work and other activities to keep up wit the site. I truely feel that a site like this is important, so that we can expand or knowledge of Parkinson's and help each other along the way.