I've been having symptoms for years of what has finally been diagnosed as Fibromyaliga. I've been fatigued for years as well. I started feeling BAD pain last April. Was in a MVA in June. Think that's what made it flare up, been lying dormant?
I have 2 biological children (son & daughter) I raised 5. I've been married & divorced 2x. Single now. I wasn't diagnosed back then, when I was married the last time, and I can almost hear him saying that I'm "just lazy". If he only knew now! Because of the extended family situation, my 2 children are somewhat estranged from me, especially my daughter.
I may not be as close to my son and daughter as I'd like to be, but I don't let that stop me from having what little quality of a life I have left. I've prayed about it and I've come to the conclusion that if they'd rather not spend time with me, that's ok. It's up to them. And maybe it's good that I'm single now.... Hmmmmm...dunno.
Since I've been having pain it's affected my "social life", not that I've been a social butterfly by any means, but now it's very hard to keep up with friends and this is one place I come to and feel friendship; the more I come here, the more I feel it. And it's like a lifeline for me. So I appreciate all of you. Just had to stick this paragraph in my very wordy "About Me"! Guess that's part of not having a social life, I talk myself silly on here!! But it feels good to be able to do so; it's very therapeutic for me.
My parents are the best in the world. I'm very blessed to have them and that they are still together and love each other like they do! They have their own health issues (due to age, nothing bad) so I can't expect them to help me with much, in the ways of getting around, etc. They are such an inspiration to me!
I get really angry sometimes and I wonder, could someone REALLY put up with me when I get "ill"? I also have SEVERE and I do mean severe, anxiety/panic attacks. They are so debilitating that I can't even function at times. They make me sweat, have heart palpitations, I can't eat, I have OCD tendencies, I grit my teeth til my jaw aches all the way up to my temples and the nausea is so bad! I could go on, but I won't because just talking about it can make me have one. And anything can bring them, so can "nothing". That's what I meant by maybe it's good that I'm single now because I'm not sure how well a husband or boyfriend would be able to handle all of this. I do not wish to grow old alone tho', if that's God will.
UPDATE! My son is now married and we are starting to speak again. My daughter turned 20 on June 5th, and she is no longer speaking to me! It switches up, evidently! She was the one talking to me and my son wasn't. I just "go with the flow"!
I will be a grandmother in January and it's a boy!!!!!!! And not only that, they (my son and daughter-in-law) will be moving BACK home from Salt Lake City!!!! I can't wait! That way I'll be able to be around when my grandson is born!
I found a Rheumatologist and started seeing him on Friday, 6/4/2010. He prescribed my new meds and I saw the dr. that diagnosed me on 6/1/2010. She wrote my RX's for Neurontin and Ultram (I have since stopped taking them both). Not sure if I'll go back to her or not. We seemed to reach a point where she can no longer help me. It's time to move on and see how this new dr. can help me. His ofc. just called me and told me my lab results. I have a "fatty liver" and my blood sugar was high. Possible diabetes?
UDPATE: Got an internist now, so he's going to be my primary care physician and I AM diabetic. And the lab work he had done shows that the fatty liver is now fine since I've stopped taking pain meds with SO MUCH Tylenol in them. Geez, I was the one that suggested to my doc that I STOP taking so much Tylenol since I take OTC Tylenol Sinus Medication (I use CVS's brand) for my severe sinus headaches....gotta grab the bull by the horn sometimes. The doc that diagnosed me is the one who started me on the pain meds w/Tylenol and she warned me not to take anything with Tylenol in it. So that's no longer an issue.
I was suffering from SO MANY allergy related infections this summer and the heat and humidity did NOT help! UGH! I hate living in the southeast! I am waiting on Fall and Winter! We don't have only 3 months of summer here, unfortunately. At any rate, I kept finding it increasingly hard to catch my breath and wheezing so bad with a horrible cough, saw my ENT, he told me that it was my lungs, he couldn't help me. Saw a pulmonary specialist and at first thought it was COPD, thank goodness it's not (never smoked, but ya don't have to be a smoker to have COPD, my mom has it, never smoked).....I have severe asthma and started on Symbicort which IS for COPD. Go figure!
I "blew out" my right knee in 2003 (ruptured tendons and ligaments) and now that knee can tell me what the weather is gonna be! And I found out in '03 that I also have an enchondroma tumor in that knee as well. And was told by one of the docs I saw that I have osteoarthitis in both knees. Which is simply so much fun regarding the trigger points and knees!! YAY!
I have been denied disability and even tho' I don't WANT any more health issues, I hope that if I must have them, they'll help with my appeal that a lawyer is helping me with. ALL prayers will be appreciated! Here's to a "GOOD DAY"....and one day at a time!