I am a wife of an optometrist, the mother of a 14 year old son, a dog mom to a pound dog named AJ, and a published children's book author.
I have been chasing a firm diagnosis for over eight years. It all began with muscle spasms and severe pain in my legs and hips. I've also had a intractable migraine that lasted for one year, pain all the time...24-7. In it's wake, was the swiss cheese appearance of my brain...but for some reason, that wasn't enough of a diagnosis.
During this process of diagnosis, a syrinx was found in my spinal column. Syringiomyelia is a demylinating disease that causes a cyst to grow down the spinal cord like a hollow straw. As the straw fills and expands with spinal fluid, the nerves are affected. The amount of width and length of the syrinx determines the amount of spinal material that is destroyed.
Finally, in October of '07, I had the same type of intractable migraine headache. It lasted only 14 hours, but the result was weakness and foot drop on my left side. I am currently fighting the joys of the MS Hug, the first one being so severe that I was taken to the hospital in an ambulance for fear of a heart attack.
I tell you this, not because my story is unique, but because I choose to fight this disease as much as I can. Part of the fight is increasing knowledge and finding a community that supports each other.
I'm glad to have found you!
0 for others
Dec 16, 2007
Dec 06, 2008