I've been having problems w/exhaustion & pain since March '09. We've finally figured out what part was thyroid trouble & gall bladder. 12/10 The rheumatologist said that I have fibro & UV sensitivity. I think I have a Lupus type thing but it won't show on tests & thank God the rash is staying away. My platelets are lower then normal & were dropping in '09. Yoga, exercise & foot bath detox help the most. For muscle weakness I drink sugar-free AMP & Monster. 1 can a day & over a period of 2 hrs while I'm at work. 5/9/11 I have Celiac disease, self diagnosed. I feel 80% better on the diet!
It has been a nightmare but I am much better. I have fought to find answers and do a lot of research on my own. When I'd build a list of symptoms & matched it with an ailment I would ask the doctor to check & rule it out. Once I was diagnosed with fibromyalgia and I realized I had an auto-immune disease (even though they couldn't find it in blood tests) I started researching natural remedies. The foot bath detox is excellent! I can't begin to tell about what it's done in the way of helping joint pain, body aches, skin tenderness & exhaustion! My machine broke 2 wks ago and I'm going back down hill again after a couple months of feeling normal. That is thanks to finding I'm horribly allergic to gluten & going on a gluten-free diet :) I've also slept much better b/c of the diet and school being out so the kids let me sleep. I list yoga in here b/c if you have muscle spasms or stiff joints & you do yoga it will pull all of that out! When I was at my worst I'd force myself to do a beginners yoga dvd all the way through a session & I would get up feeling almost like a new person. Fluorescent lights really bother me & I lost my job at a tax office because of them. They mess with my concentration & ability to read numbers. Some computer screens flash & that makes it even harder. Sunlight is fine but if I am under those bulbs for 3 hrs up & they are right overhead I turn red & am a mess mentally & emotionally. Physically I hurt for the next couple of days. I had an EEG done 11/11 & it showed abnormal readings but not seizures. The doctor put me on gabapentin & it is doing wonders with concentration and has gotten rid of almost all my symptoms due to flickering lights & computer screens.
My sister also has fibromyalgia and is dealing with a lupus type ailment. It is REALLY hard on her because of her long stressful hrs at work. We have learned to leave our family out of our daily pain & frustrations & text each other with complaints of pain & anything else going on. It takes a load off the family & we know we are talking to someone who understands. I really only talk to my husband about it if I have a new symptom I've had checked out or I've been to the doctor & he needs to know something. It seems to work better that way for both of us. I don't always feel I'm whining & he knows when I say something about it that it's really gotten worse or there's a new development he needs to know about.