I have worked in a high-stress environment for 15 years which I am free from now as I cannot write, speak coherently or provide the same quality of work as I was previously able to do. I am newly unemployed with no health insurance, and therefore, have been unable to find a neurologist to treat me and rely on my PCP to manage my new DX. I am frightened, and feel utterly hopeless, helpless, depressed with no idea where I will receive help. I have many lesions on my brain as well as 12 bands in the spinal fluid sample, and a neoplasm on my brain. I need help and cannot find any.
I was exposed the Epstein-Barr Virus 12 years ago when my teenage son had Mono, and I succomed to Bells Palsy. An MRI at that time showed three lesions, so I was referred to a neuro for assessment and a spinal tap. The neurologist did not find enough evidence to DX me with MS at that time, but I have had no follow-up until October 2009 when tremors on my right side, especially my hand, prevented me from even writing my name. I also suffer from swallowing difficulties, eye disturbances and bladder hesitancy, and headaches, depression. I have no coordination and find myself walking sideways or tripping over my right foot. I lost the strength in my arms and legs about five years ago, I thought then it was my cholestrol meds it happened so quickly. Any ideas out there for help with treatment and follow up MRI since I am a self-pay and am currently without work? My husband is 65 and on Social Security. We have no hope right now for help.