I am the mother of 4-2 sons, 26,23 and 2 daughters 17,15. I love sewing, machine embroidery, crocheting, and I want to make quilts for family members. I also can make porcelain dolls, which I love-but have not had time for the last few years. Hopefully I can start up again after I start treatment. I love animals and have done rescue work for over 4 1/2 years-which I can no longer do. Currently have 3 rescued dogs, 2 new puppies (which have brought immense joy to my life!!), and 3 tiny persian cats.
I had an experience with temporary paralysis in 2000, and primary care dr dropped me as a patient when I needed him most-paralysis lasted 2-3 wks. Then took me mos to find a new primary dr. I have been to many specialists, including 3 neurologists, 5 rheumatologists before getting any answers at all to my symptoms. When I experienced paralysis--I also experienced shooting shocking sensations through my body-as well as intense pins and needles or burning sensations and pain-with no explanation for it. I also learned that I could not tolerate a heating pad any more--as it caused an increase of pain instead of alleviating it--and sent electrical shock sensations through my body--I have not been able to use one since!! I experienced different difficulties on and off for years--without seeing a specialist the last several years until 2008. I ended up in the er with severe pain and problems with my eyesight. I have been searching for answers ever since, I now have a wonderful group of drs working with me--My Neurologist, Primary Dr, Rheumatologist, and Opthamologist are now working on plans to help me--and to watch my progress closely--to try and control the progress of disease. Hopefully I can soon get symptoms under control and be able to be myself again for the first time in years. Currently my main problems are severe headaches, aching pain in the back of my eyes, severe stiffiness in my neck, into the base of my skull, into my shoulders and chest. I have also been diagnosed with cervical dystonia and am getting botox injections for that, I also have interstitial cystitis, Optic Neuritis, Fibromyalgia, and have a long history of Endometriosis, etc. Most problems I have had through the years are considered immune system related--including a long list of allergies and sensitivities--penicillin, levaquin, detrol, iodine, latex, some plastics and adhesives and tapes, demerol, codeine, soaps, cleaning products, molds, mildews, fungus.