im a mother of 6 a grandmother of 4. ive been with my husband since high school. he is disabled, needs a wheelchair among other things, now but he cosntinues to work so that i can have medical insurance. we take it one day at a time. my daughter was dx at 22, my cousin was dx in the 60s and my uncle had ms. my dx was sudden and i knew when i didnt have a brain tumor in the middle of seizures that it was ms. ill tell my story below. i live in a commubity with a lot of other Msers, my town is not that big, i just spoke to a lady who lives in adjacent town who said her town also has a lot of ms?
i was shopping with my daughter when i pushed my cart right into a pillar on my left side. there was nothing on my left side. i didnt see it or her when on my left side. weird. she was driving, we went home. sight returned. later i went to get a glass out of the cabinet and flashbulbs went off in my eyes, i didnt tell anyone about this, i had a headache at this point, so i took tylenol, my thumb did not look like mine. never took acid, but im thinking that was similar experience. i wasnt alarmed, nor could i think clearly enough to seek med attention, although if i had told someone or if someone told me they were experiencing such things i would have them in er.
my husband woke in the middle of the night with me in a grand mal seizure, he called emts. i was in a lot of trouble not enough oxygen to my brain, the grand mal seizures lasted a week with more seizures lasting several months, i was in and out of a coma state for several days, only remeber bits and pieces. i do remember my doc getting very nervous when i came to and started questioning him about a brain tumor dx. that was not the case after some tests, so i said test for ms, sure enough. i couldnt see well, words were scrambled, sometimes they still are, my food looked neon and crawled, still i ate LOL. i didnt know how to get home, still dont. the nurses kept questioning my family about drug and alchol use, they wanted my daughters to go home and look for my secret stash i supose. dont drink, ok an occasional glass of wine, never drugs, okay an occasional tyneol. it took me almost a year before my eyes could focus on the words of a page and i could read a book again.
i went to bed one night a working active person and woke up a trainwreck. i dont like to think of that night, lots of things are different now. i cant even look at this computer without starting to get some weird flashes at the side of my eyes and have to turn it off.
but on a positive note when the dust cleared well im still here
man plans GOD laughs
2 for others
Oct 02, 2007
Nov 02, 2008