Graphic designer for 30+ years - now retired due to ALS. Grandmother of 3 and a great-grandmother of a 7 month old great granddaughter (year in Sept). Husband and I babysit while mom works. He has diaper and feeding duty since I can't use my arms enough. I get to do the silliness!
Diagnosed in May 2014 after year of misdiagnosis. Started in loss of function in right shoulder/arm/hand. Legs still strong but starting to show signs of weakness. Right arm/hand getting weaker but still able to slowly knit and crochet! Use left hand to hold as anchor and go from there. Hate typing with one finger - but happy I can still do some work on computer.
I'm also a PLM Team Advisor. Please feel free to PM me with any questions or thoughts!
Please check out my (2) blogs in the "Value of Openess" section.
ALS public registry
210 for others
Mar 28, 2016
Jun 26, 2017