60 yo male, diagnosed with PD 10/23/08, diagnosed with emphysema 10/09. Married to the most loving and supportive woman you will ever meet. I have two great sons and daughters-in law and four incredible grandsons, a granddaughter due in May 2011 and 1 super dog. My initial symptom was a disconnect between my right hand and my brain. I now have considerable internal and external hand tremor, lip tremor, stutter, I mumble alot and as a result of my mumbling and shaking, my PD name is Mumbles McShakey.
My symptoms initially started as a disconnect between my brain and my right hand. My right hand was slow and stiff and it was like a delay between when my brain told it to do something and when it would actually do it.
I am fortunate that my primary care physician took my complaints seriously, and had me tested on numerous occassions. I kept telling her that I could not get my hand to cooperate. She sent me to neurology, and they initially did the shock and needle test, where the doctor thought it was fatigue. I didn't laugh, but I wanted to. A month or so later, my doctor sent me back to neurology, this time to speak to a movement disorder specialist. After a number of tests by my neurologist, he informed me that I had Parkinson's.
My initial thoughts were "well, now it has a name and we can deal with it" And so we have been.
I got a second opinion by another neurologist when my wife and I volunteered for a gene study to try and determine if a certain gene was connected to PD. While questioning me and putting me through a series of tests, I asked her if she agreed with my PD diagnosis and she said definitely. All classical signs were there, and my physical reactions on the tests confirmed it.
I am wearing out my back space and delete keys on my computers from making corrections to my typing errors caused by my hand tremors. I hit a lot of keys multiple times in a row, and then have to go back and fix them.
My support team consists of my care partner/wife BJ, my wonderful Dr. Ingrid Lobo, my regular doctor; Dr. Benzi Kluger, my neurologist, Dr. Marvin Schwarz, my pulmonologist, my sons and daughters-in-law, my 4 grandboys; and my brothers and sisters-in-law. And I can't forget my friends and my church family.
Apr 18, 2009
Mar 05, 2014