I am a retired Social Worker and have had fibromyalgia since I was in my early 20's.Was not diagonosed until I was in my 30's.Have just begun to understand it better in the last year and all it symtoms. My mother and 4 sisters and 2 brothers have fibromyalgia, too.An aunt, 2 neices and a 1st cousin, that I am aware of.
I have found out I have had to be proactive in my care and exercise has been very helpful.
Am currently going to a Wellness Center for exercise and using a cpac machine for sleep apena. Learning as much as I can about how it affects my life,even dentists visits.
Fibro does not affect everybody the same way. I have my good days and my bad days.What really helps is having my family understand what I am dealing with,this elevates some of the stress.My husbund went to a fibro class with me and it helped him understand the basics.Everybody around me looks at me and say,"You look like nothing is wrong with you." I have the tendency to dress up so I can feel better,in my mind.But on the inside I am tore up,ever fiber in my body aches. I am afraid to be hunged too hard or even shake a hand,they may squeeze too hard. If I have a flare up,the dreaded word,where you can be in the bed for days in pain and unable to get sleep.Where I feel like a Mack truck has hit me.What helps me is my dog,Remy,I walk her every day,in pain or not.She does not judge me,she knows when I am in pain or going to flare up.Then,Leary my 36year old turtle,he is patient of all.
Then it is important to communicate with your family,no matter how hard.It is not an easy diease to handle.You want to shut yourself off from everybody at times and just runaway.My husbubd has been very patient and loving,he helps with household chores and does the cooking.But having God in my life has sustain me most of all,brought me out of the darkness,when I wanted to give up.Surround yourself with good friends and family.
Diagnosed with Triple Negative Breast Cancer in October 2013, an aggressive cancer. never heard of it before. Here I go again with something different. If affects women differently and not easy treat.