I was first told on Dec. 28, 1995, that I had ALS. Was not confirmed until October of 2001. I was a toll collector on the Pa. turnpike. I had to go on disability retirement as of Aug. 24, 2009 because of the loss of the use of my thumbs. I have a power wheel chair to get around the house and we have a handicapped accessible van to get out any. I can still stand to transfer from my lift recliner into my wheel chair but it's becoming more difficult ever day.
This photo was at my wife’s birthday party last year. It is my wife (Sharon) my grandson (Jake) and me in the front row. Back row is my mother (Catherine) my oldest daughter Julianne (jakes mom) and my youngest daughter Kim. They are my life and they are my helpers too. Only with family can we survive.
I'm winding down some. I'm still able to stand and transfer from my lift chair to my power wheel chair but it is becoming more difficult now. I still eat all foods but I need help cutting some foods. I still try to get out as much as possible. Some days are easier than others. Last night (Tuesday April 23) I went to the Elks Club for wings, and a few beers and was surprised by 2 people I used to work with prior to 1992. It was a good time. I do what I can do to lead a normal life.
ALS public registry
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May 10, 2006
Sep 19, 2014