Experimental biophysicist. Practice "open science" in both teaching and research, including open notebook science, open data, open access publishing, etc. Thus, I'm an easy believer in the potential impact of PatientsLikeMe. And from what I've seen upon joining, it's being implemented very well. Looking forward to contributing!
Currently, I am most interested in two of my conditions: eosinophilic esophagitis and carotidynia. The first, EE, is already listed on this site (PLM) and has about 8 patients. I think PLM can help in that condition, because it has only been diagnosed for a couple decades and as far as I know is still "idiopathic." Maybe if enough people contribute openly on PLM, concrete causes will be identified and therapies will be developed. The second condition, carotidynia has been a possible diagnosis for a much longer time, but is for the most part unknown, and possibly not even a worthwhile diagnosis (see wikipedia article which I started: http://en.wikipedia.org/wiki/Carotidynia). There is evidence linking it to migraine, and a much stronger connection could possibly be identified if people on PLM start listing the condition. PLM could also help guide whether or not carotidynia is a true condition.
Oct 30, 2011
Mar 07, 2014