Depression is only 1 of 3 major health issues I live with. I also have severe Osteoarthritis that has attacked all my major joints. Both knees have been replaced & I've had 1 Spinal Fusion at L5-S1. Unfortunately, it needs to be redone and I need 5 more levels fused; C5-6, C6-7, C7-T1, L3-4. L4-5. Looking into heading to Bremen Germany to Stenum Hos, where they've been doing Artificial Disc Replacements for over 15 years.
Dercum's Disease - rare - NORD- connective tissue, collagen, benign tumors (lipomas which can also include fibrous & angio components and more). Progressive, painful...
It will take some time for me to post my bio - it will happen in short spurts!
One thing that is extremely important for me to share right now, is a new website, launched by Dr. Karen L. Herbst, who is currently researching Dercum's Disease (which I have), Madelung's Disease, Familial Multiple Lipomatosis and Lipedema.
http://kherbst.startlogic.com/3501.html Karen L. Herbst, PhD, MD,
is a research endocrinologist at the VA Hospital in San Diego, California USA, and Assistant Professor of Medicine at the University of California at San Diego (UCSD)
Through her new website, she will be sharing her work, with those of us living with any of the forementioned diseases and, quite importantly, the doctors who treat us on a regular basis.
I have found it frustrating to get my doctors to talk to each other; to sharing what information they've gleened about my complicated health profile, in order to piece together the larger picture of how best to direct my healthcare. It is of the utmost importance that all of my doctors confer with Dr. Herbst - my quality of life depends on it!
It's my Internist and Specialists who get to examine me on a regular basis, something which Dr. Herbst can not do since she is located in San Diego, CA. Too often I've been told by doctors that they'll contact another of my doctors, but rarely has it happened or that I'm aware of.....
Growing up the daughter of a doctor who had a General Practice, did deliveries and for a number of years also did Anesthiesia. I saw how he worked - how he was proactive for his patients, conferring with their other doctors - the quality of care he provided!
In this day and age, IMO, I've found that doctors seem to be afraid to do what they've been trained for. Worried about malpractice or the lack of trust by the government to treat patients with difficult health problems for fear of having their license taken away or having the DEA breathing down their necks. Some of the concerned physicians have, as pertaining to malpractice, would be to be honest and forcoming with their patients - be it a mistake or witholding information that needs be shared with the patient.
It's very sad for all parties involved - more so for patients.
That's all for now. Hopefully you have an idea of where I'm coming from and a few of the barriers which stand in my way and working to overcome.