My name is Emerson Ailidh (ā-lee) & I'm a disabled high school student living in north Texas. I love music, I play the piano, violin, & guitar when my hands aren't giving me too much trouble. I love reading, my favorite book is The Dogs of Babel by Carolyn Parkhurst. I also love sewing, drawing, & basically anything else creative. When I was a little girl & everyone else wanted to grow up to be movie stars & presidents, I wanted to be a tattoo artist. Now I want to be a physician though, just don't know what specialty.
My primary condition is Lyme Disease, which I was infected with in May of 2005 & diagnosed with in August of 2010. I also caught three of its co-infections, Bartonella, Babesia, & Mycoplasma. Inexplicably I also somehow ended up with a parasite, Blastocystis Hominis. All of these infections (in addition to loads of others including HHV6) were allowed to fester & go undetected for years on end thanks to my lazy immune system. As of yet I am not diagnosed with any official immunodeficiency although I have registered abnormalities including but not limited to suppressor cells functioning at half capacity. For the time being I just call myself "ImmunoStupid".
As it proliferated & invaded new tissues my Lyme Disease gave me all sorts of other problems over the years. Since I was infected I have been diagnosed with Cervical Dystonia, Sydenham's Chorea (misdiagnosed as Tourette's Syndrome), Narcolepsy, & more. I am currently halfway through treatment & have come to terms with the fact that I will never achieve 100% remission of my symptoms. In Texas, as in many other states, Lyme is a horribly misunderstood & politicized disease. Accordingly, I have become quite the activist since my half-a-decade tardy diagnosis this past August. I TESTED SEROPOSITIVE FOR BORRELIA BURGDORFERI THROUGH LABCORP. I didn't search for a diagnosis & find Lyme (no disrespect to any who did), it found me & instead of moping about my lost years I've opted to fight for the ones I still have.
One proposed mechanism for my immunological problems is a condition called PITAND, also known as PANDAS. I HAVE been officially diagnosed since 2006 but not much is known about how this disease really works. In theory, after a massive infection (especially GABH strep) the antibodies get confused & attack the Basal Ganglia through an autoimmune process called molecular mimicry. This is effectively the same thing seen in Rheumatic Fever, just in a different area of the body. This can cause any variety of disorders involving qualities originating from that portion of the brain, including cognition & movement. Whether it causes immune problems or is caused by them is up for debate, so no one knows for sure whether or not this is the culprit or just another co-existing condition.