Just a silly girl who has had MS for almost 5 years. Times have been very hard, but I've gotten through them with all my treatments. Hm.. Well some people dont know that I have all of these disorders from when they look at me because I seem so happy and normal. And when I tell them they are extremely shocked. But that's something I've gotten used to now, so I just live out my life with this random disease I have and try to keep a positive outlook on things. :)
I was diagnosed with MS around the age of 15 and things were pretty hard at that time. School was my main thing though. Getting the weakness and not able to use my hands jeopardized me doing my work in school. But then I started my treatments and things got better for a few years. Then I would say 2 years later I was having the major boils in places that were painful and ugly. I went to dermatology for that and they they said I had a skin disease called Hidradenitis Supprativa. That disease only gets better when I'm on my meds, and they leave very ugly scarring. So I'm definitely not very okay with this problem I have. Afterwards, about a year later my eyes started going crazy to the point where my vision in my right eye was 20/100. It was very hard to see so that was causing me major problems along with the MS and HS. I went to see my doctors and they told me it was Optic Neuritis. That was just another disorder to add onto the two I already had. So for a little while I started dealing with all three of these very well, until I went to get a blood test and said my Iron levels were very low (which my mom and I have been trying to tell them for 3 years already) and I needed to get that treated. So I started on Iron supplements, which wasnt working. That was when they decided that I probably needed another treatment of IVIG. Though the problem with doing that was my veins are very small and horrible for sticking so a plan to get a port in place was brought up and I have that in my chest currently. It has helped in many moments and I am very glad that me and my mom decided to go through with that. But after that I started getting an Apheresis treatment which wasnt doing anything but taking more of my blood and making me feel very fatigued. So now I'm done with all of that at the moment and am currently taking vitamins and medication (along with the Copaxone) that my doctors prescribed for me. Things are okay, but I wish they could be a bit better.
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Jul 11, 2011
Jul 09, 2012