I enjoy singing in our gospel bluegrass group. I used to play the guitar but I can't do it anymore. I completely forgot how to play it...after my brain surgery I tried to learn it all over again but it doesn't seem to connect in time...I know when to change cords...but it doesn't seem to register in my brain to my fingers in time... anyways...I can play it and entertain me and the dog! But I do love to sing. I sometimes have trouble with remebering the words..and I always hope it is one of my good days when we are singing.
One day I was sitting at home drinking coffee with my husband and the next thing I remember I was in an ambulance being asked what day it was...who was the President, what year it was...all of which I had no idea... I remeber looking around thinking...OMGoodness! I must have been in a wreck or something. The Paramedic asked me if I knew what had happened and I told him no...he told me I had a grand-mal seizure. Anyways...I went to the ER and ER doc did a CT scan which showed nothing. He relased me. The next week my mother took me to my regular doctor and he said I was in a post-ictal state...it was 2 months before I could see the Neuroligist. When I went he didn't seem like he believed me...so I showed him where my teeth had been craked and some broke from the seizure...he ordered a MRI with dye and without. Only thing that showed up was multiple lesions in the white matter of the brain. Which he brushed off. I finally asked him on about the 3rd visit what the lesions were from and what did it mean...he said.."I have no idea" we rocked on...he gave me Topamax for my seizures when I guess he figured out I really did have them...the Topamax is for migraines as well and everytime he would come into the room..he would ask me " How is your headache " I would say...I don't have a headache...for a year this went on.."Oh yeah..the Topamax has terrible side effects in somepeople..so anyways..the doctor decided I was depressed because I was getting upset about the strange feelings in my legs and arms and hands...the weird feeling I had in my head and the terrible memory problems...he gave me Lexapro...and changed my seizure med to Lamictal. I got my ENT doctor to get me into a teaching hospital and took all 3 of my MRI's from 2 different places and 2 different doctors..all read normal except for the multiple lesions..when I got there..he looked at my films(not the reports) and on the second sheep of films he said..here is your problem...my brain had herniated and so after a crainiotomy and a little less brain and 2 titianium plates...there was alot of infection in there and that part of the brain was dead. But when I see any new doctors...the start with the MS and then the Neuro did a spinal tap and it was normal...so when they hear that then that is ruled out. I have now been sent to a regular Neuro doctor at the teaching hospital and he is trying to find out why I have the memory problems and the days I seem in a "fog" He still wants to do a work up about MS on me...I read this in a letter he sent to the one who referred me to him. So what does it all mean? I hurt all over...very tired...been told I have RLS and arthriis in my neck back and knees so far...not that they are treating much..they do the RLS. But when I got up anough nerve today to look up MS on the computer..I see alot of the same symptoms. This has been such a journey...I am just at a loss here. What else will the do or is the will ever be able to tell me if I have it.
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Mar 17, 2008
Dec 05, 2008