Hello, my name is Autumn.. So very happy to meet you, finally. LOL. I began passing out as a young child after breakfast or when I was stressed about something or I would just find myself in bed yet not knowing when or how I got there.. Hours would just fly by sometimes even be the next day.. Anywho, started having (grand-mal or tonic-clonic seizures when I was 10. Did not get on med regular until I was 18. I lived many years before that just showing up in the hospitals, once again not knowing what or how I got there. Meds worked for many years until the past 1.5 yrs Tree limb fell on head
Learning more and more about mine and many other's seizures every day.. This past year my meds began to NOT work as well.. Went up and up on 4 different meds then they decided with all the symptoms I was having that they should really get a better grasp as to what we are dealing with. Sooooo, went into our local hospital for a week stay to be monitored EEG and video'd.. I think I know more now.. That my seizures are general tonic clonic.. Yet, I knew that whole week I was feeling waaaaaaaaaay more that just what they were seeing. I left with a new med, @ least to me Keppra xr 750 morning night.. Began week 2 home with lots of numbing and tingling in mouth, legs arms and de' ja vu feeling, smells u know the same ole routine of this smells familiar yet i am only suppose to have tonic clonics.. hmmm, am I losing my mind or can they just sometimes not see what we feel? Anywho, thanks to all of you here that are laughing right now, because YOU know egggggzactly what the heck I am talking about.. ok, back to the story, today they lowered my keppra to 500 2 times a day.. Had massive what I think are "other" seizures where all they symptoms come together to make an average mess of some other sort of seizure that I am not suppose to have.. according to them.. Anywho, Friday they are talking about increasing the dose to 1000 mlg 2 times a day.. we will see.. Really makes me think.. how bout you?